Suggest a Resource


Contact: Amy D’Avia


Angelman syndrome
Assistive Technology
ALLTech @ Spurwink
400 Riverside Street, Suite A4
Portland, ME, 04103

Epilepsy Foundation Massachusetts, Rhode Island, New Hampshire & Maine P.O. Box 1412
Saco, ME 04072
Headquarters in Boston:
540 Gallivan Blvd, 2nd Floor
Boston, MA, 02124

Maine Speech-Language-Hearing Association
Strong Elementary School
110 N. Main Street
Strong, ME, 04983


Autism Society of Maine
72B Main Street
Winthrop, ME 04364
Phone: (800) 273-5200

Maine Autism Alliance
65 Patterson St
Augusta, ME 04330
Phone: (207) 626-3042
Contact: Heidi Bowden

Merrymeeting Behavioral Health Associates
76 Pleasant Street
Brunswick, ME 04011
Phone: (207) 721-0214


Educational Services:
Maine Department of Education Special Services
23 State House Station
Augusta, ME 04333
Phone: (207) 624-6650

Rehabilitation Services:
Maine Department of Labor

NLS Library:
Library Services for the Blind and Physically Handicapped
Maine State Library
64 State House Station
Augusta, ME 04333-0064
Phone: (207) 287-5650
Fax: (207) 287-5654
Toll-Free: (800) 762-7106

Other Agencies:
Education Services for Blind and Visually Impaired Children
P.O. Box 645
Biddeford, ME 04005
Phone: (207) 592-4760
Fax: (207) 282-1694
Toll-Free: (888) 941-2855 5416

Maine Adaptive Sports and Recreation
8 Sundance Lane
Newry, ME 04261
Phone: (207) 824-2440
Fax: (207) 824-0453

Maine Department of Education Child Development Services
Interdepartmental Coordinating Council on Early Intervention
State House Station #146
Augusta, ME 04333
Phone: (207) 624-6660
Fax: (207) 624-6784
Toll-Free: (877) 770-8883

Maine Parent Federation
484 Maine Avenue, #2D
Farmingdale, ME 04344
Phone: (207) 588-1933
Fax: (207) 588-1938
Toll-Free: (800) 870-7746

MaineCITE University College
46 University Drive
Augusta, ME 04330
Phone: (207) 621-3195

National Association of Parents of Children with Visual Impairments
16 Spruce Swamp Rd E.
Buxton, ME 04093
Phone: (207) 229-5937

New England Blind Athletic Association
11 Veazie Street
Veazie, ME 04401
Phone: (207) 831-5229


Cerebral Palsy
UCP of Maine
Address 700 Mt. Hope Ave. Suite 320
Bangor, ME 04401
Phone: (207) 941-2952
Twitter: @UCPofMaine


Down syndrome
Maine Down Syndrome Network
Windham, ME
Phone: (866) 571-2223


Contact: Amy D’Avia


Edwards syndrome
Contact: Michael and Pam Healey
Lexington, MA
Phone: (781) 862-8273, (339) 221-1113


Epilepsy Foundation New England
335 Main Street #8
Wilmington, Massachusetts 01887
Phone: (617) 506-6042
Toll Free: (888) 576-9996


Portland Area
Contact: Kristen Melanson
FB: State of Maryland Hydrocephalus Association Community Network


Online Support:
Achondroplasia: LPA District 1
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Alabama Autism & Asperger’s Statewide Info & Support Network
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: UCP of Maine
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: Maine Cherubs- Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: DiGeorge Syndrome, 22q11.2 Deletion, DiGeorge, VCFS etc
Down syndrome: Down Syndrome Alabama- Parents & Caretakers, Down Syndrome Alabama
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Foundation of Alabama
Hydrocephalus: State of Maryland Hydrocephalus Association Community Network, Baltimore, Maryland- Hydrocephalus
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Association of Alabama
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly



Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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