Illinois

Suggest a Resource
Achondroplasia
Contact: Dan Verscha
Email: dan@actionphotoqc.com
Website: http://d6.lpaonline.org/

Angelman syndrome
Epilepsy
Epilepsy Resource Center
(serving central Illinois)
232 Brun Lane
Springfield, IL, 62702
Phone: (800) 800-6401
V/TTYL (217) 726-1839
Website: llobue@spfldsparc.org

Parent Training and Information Center (PTI)
Family Resource Center on Disabilities
20 E. Jackson Boulevard, Room 300
Chicago, IL, 60604
IL: (800) 952-4199
V: (312) 939-3513
TDD: (312) 939-3519
Special Format Library
Illinois State Library
Talking Book and Braille Service
401 E. Washington
Springfield, IL, 62701
IL: (800) 665-5576 ext. 5
Phone: (217) 782-9435
TTY: (888) 261-5280
Speech, Language, and Hearing
Illinois Speech-Language-Hearing Association
35 East Wacker Dr., Suite 850
Chicago, IL  60601-2106
Phone: (312) 644-0828
Blind
Educational Services:
Illinois State Board of Education: Special Education and Support Services
100 North First Street
Springfield, IL 62777-0001
Phone: (217) 782-5589
Fax: (217) 782-0372
Toll-Free: (866) 262-6663
TDD/TTY: (217) 782-1900
School for the Blind
Hadley Institute for the Blind and Visually Impaired
700 Elm Street
Winnetka, IL 60093
Phone: (847) 446-8111
Fax: (847) 446-9916
Toll-Free: (800) 323-4238
TDD/TTY: (847) 441-8111
Illinois School for the Blind and Visually Impaired
658 East State Street
Jacksonville, IL 62650
Phone: (217) 479-4400
Fax: (217) 479-4479
Toll-Free: (800) 919-5617
TDD/TTY: (217) 479-4415
Philip J. Rock Center and School
818 DuPage Boulevard
Glen Ellyn, IL 60137
Phone: (630) 790-2474
Toll-Free: (800) 771-1158
Rehabilitation Services:
Illinois Department of Human Services/Division of Rehabilitation Services: Bureau of Blind Services & Business Enterprise Program for the Blind
Bureau of Customer Support and Services
100 South Grand Avenue East
Springfield, IL 62762
Phone: (217) 785-3887
Fax: (217) 524-1234
TDD/TTY: (800) 447-6404
NLS Library:
Illinois State Library Talking Book and Braille Service
300 South Second Street
Springfield, IL 62701
Phone: (217) 782-9435
Fax: (217) 782-6062
TDD/TTY: (888) 261-7863
Illinois Taking Book Outreach Center
125 Tower Drive
Burr Ridge, IL 60527
Phone: (630) 734-5210
Fax: (630) 734-5055
Toll-Free: (800) 426-0709
Other Agencies:
American Blind Skiing Foundation
609 Crandell Lane
Schaumburg, IL 60193
Phone: (312) 409-1605
Ann & Robert H. Lurie Children’s Hospital of Chicago
225 E. Chicago Avenue
Chicago, IL 60611
Phone: (312) 227-4000
Blind Service Association
17 N. State Street
Suite 1050
Chicago, IL 60602-3510
Phone: (312) 236-0808
Fax: (312) 236-8679
CHARGE Syndrome Foundation
318 Half Day Road #305
Buffalo Grove, IL 60089
Phone: (516) 684-4720
Fax: (888) 317-4735
Toll-Free: (800) 442-7604
Chicago Lighthouse for People Who Are Blind or Visually Impaired
1850 West Roosevelt Road
Chicago, IL 60608
Phone: (312) 666-1331
Fax: (312) 243-8539
TDD/TTY: (312) 666-8874
Chicago Rowing Foundation
P.O. Box 18386
Chicago, IL 60618
Phone: (773) 495-4523
Helen Keller National Center for Deaf-Blind Youths and Adults: North Central Region Office
485 Avenue of the Cities
Suite 5
East Moline, IL 61244-4040
V: (309) 716-3657
Fax: (309) 755-0025
Hope School
50 Hazel Lane
Springfield, IL 62705-5810
Phone: (217) 585-5437
Fax: (217) 786-3356
TDD/TTY: (217) 529-5766
Illinois Association for Parents of Children with Visual Impairments
21170 Deerpath Road
Frankfort, IL 60423
Phone: (630) 357-8576
Illinois Bureau of Early Intervention
823 East Monroe
Springfield, IL 62701
Phone: (217) 424-1596
Fax: (217) 524-6248
Toll-Free: (800) 323-4769
TDD/TTY: (217) 558-6482
Illinois Eye Institute: Low Vision Rehabilitation
3241 South Michigan Avenue
Chicago, IL 60616
Phone: (312) 225-6200
Toll-Free: (877) 949-3937
Illinois Instructional Materials Center
1850 West Roosevelt Road
Chicago, IL 60608
Phone: (312) 997-3699
Fax: (312) 997-1687
Illinois State Board of Education: Early Childhood Division
100 North First Street
Springfield, IL 62777
Phone: (217) 524-4835
Fax: (217) 785-7849
International Association of Lions Clubs (Lions Clubs International)
300 West 22nd Street
Oak Brook, IL 60523-8842
Phone: (630) 571-5466
Fax: (630) 571-8890
Loyola University Medical Center: Ophthalmology Clinic
2160 South First Avenue
Maywood, IL 60153
Phone: (708) 216-3833
Fax: (708) 216-3557
Northwestern Medical Faculty Foundation: Ophthalmology Department
675 North St. Clair, #15-150
Chicago, IL 60611
Phone: (312) 695-8150
Fax: (312) 695-3652
NSSEO Visually Impaired Support Services
201 South Evanston
Arlington Heights, IL 60004-6899
Phone: (847) 463-8291
Fax: (847) 463-8114
TDD/TTY: (847) 463-8115
Prevent Blindness
211 West Wacker Drive, #1700
Chicago, IL 60606
Phone: (312) 363-6001
Fax: (312) 363-6052
Toll-Free: (800) 331-2020
SASED/DuPage/West Cook Regional Special Education
1500 South Grace
Lombard, IL 60148
Phone: (630) 629-7272
Fax: (630) 629-0544
Southern Will County Cooperative for Special Education
1207 North Larkin Avenue
Joliet, IL 60435
Phone: (815) 741-7777
Fax: (915) 741-7779
Spectrios Institute for Low Vision
Deicke House
219 East Cole Avenue
Wheaton, IL 60187
Phone: (630) 690-7115
Fax: (630) 690-9037
TDD/TTY: (630) 690-2509
Cerebral Palsy
UCP Heartland
13975 Manchester Rd.
Manchester, MO 63011
Twitter @UCPHeartland
Website http://www.ucpheartland.org
Name UCP Land of Lincoln
Address 101 N 16th St.
Springfield, IL 62703
Twitter @UCPLL
Name UCP Seguin of Greater Chicago
Address 547 W Jackson Suite 225
Chicago, IL 60661
Twitter @UCPSeguin

CHARGE syndrome

Congenital Heart Defect Adult Congenital Heart Disease Program
Advocate Children’s Hospital
Oak Lawn, IL
Phone: (708) 684-5580
Contact: Maria Roeters

Medical Director: Lisa Forbess, MD

Center for Adults with Congenital Heart Disease (CACH)
University of Chicago Hospitals
Chicago, IL
Phone: (773) 702-4183
Medical Director: Daniel H. Gruenstein, MD
Northwestern Adult Congenital Heart Center
Northwestern Medicine: Bluhm Cardiovascular Institute
Chicago, IL
Phone: (312) 695-4965
Medical Director: Marla A. Mendelson, MD
OSF/CHOI Adult Congenital Heart Program
Childrens Hospital of Illinois
Peoria, IL
Phone: (309) 655-3453
Medical Director: Marc D. Knepp, MD
Cleft Lip and/or Cleft Palete 
Cleft and Craniofacial Team – CPT, CFT
Shriners Hospital for Children
2211 N Oak Park Ave
Chicago, IL 60707-3351
Phone: (773) 385-5405
Fax: (773) 385-5830
Patient Age Range: 0-21
Team Leader: Pravin K. Patel, MD
Cleft Lip and Palate/Craniofacial Team – CPT, CFT
Lurie Children’s Hospital of Chicago
225 E Chicago Ave # 93
Chicago, IL 60611-2991
Phone: (312) 227-6250
Fax: (312) 227-9408
Patient Age Range: 0-21
Team Leader: Arun K. Gosain, MD
Craniofacial Center – CPT, CFT
University of Illinois Hospital and Health Sciences System
811 S Paulina St
Mc 588 / Suite 161
Chicago, IL 60612-4353
Phone: (312) 996-7546
Fax: (312) 413-1157
Patient Age Range: 0-99
Team Leader: Mimis Cohen, MD

Coordinators: Elizabeth Ellevog, MS; Alma A. Moya, RN

Rush Craniofacial Center – CPT, CFT
1725 W Harrison St Ste 425
Chicago, IL 60612-3893
Phone: (312) 563-3000
Fax: (312) 563-2514
Patient Age Range: 0-99
Team Leaders: Alvaro A. Figueroa, DDS, MS; Christina Tragos, MD
University of Chicago Cleft Lip and Palate Clinic and Craniofacial Anomalies Multidisciplinary Program (CAMP) – CPT, CFT
5841 S Maryland Ave
Mc 6035
Chicago, IL 60637-1447
Phone: (773) 795-4525
Fax: (773) 702-1634
Patient Age Range: 0-21
Team Leader: Russell R. Reid, MD, PhD
Cleft Lip and Palate Team – CPT
Loyola University Ronald McDonald Children’s Hospital
2160 S 1st Ave Dept of
Maywood, IL 60153-3328
Phone: (708) 327-2365
Fax: (708) 327-3463
Patient Age Range: 0-18
Team Leader: Parit A. Patel, MD
Advocate Children’s Hospital Cleft and Craniofacial Team – CPT
1675 Dempster St Fl 3
Park Ridge, IL 60068-1110
Phone: (847) 723-7308
Fax: (847) 723-9457
Patient Age Range: 0-21
Team Leaders: Frank A. Vicari, MS, MD, FACS, FAAP; James W. Weedon, MD

Coordinators: Ady DeLaGarza, CMA; Christine Provenzano, RN

Central Illinois Orofacial Anomalies Team – CPT
507 E Armstrong Ave
Peoria, IL 61603-3201
Phone: (309) 686-1177
Fax: (309) 686-7722
Patient Age Range: 0-21
Team Leaders: Eric T. Elwood, MD

Coordinator: Tracey Arahood

SIU Congenital Head & Neck Anomalies Clinic – CPT
747 N Rutledge St
PO Box 19653
Springfield, IL 62702-6700
Phone: (217) 545-7031
Fax: (217) 545-2588
Patient Age Range: 0-21
Team Leader: Kevin A. Calder, MD, FRCSC

Coordinator: Penny Praia

Carle Cleft Lip and Palate Team – CPT
602 W University Ave
Urbana, IL 61801-2530
Phone: (217) 383-4383
Fax: (217) 383-4468
Patient Age Range: 0-18
Team Leader: Jonathan S. Bailey, MD, DMD, FACS

Coordinator: Jayne Miller Wachtel, MA

Crouzon syndrome
Children’s Hospital of Chicago

Plastic & Reconstructive Surgery

225 E. Chicago Avenue

Chicago, IL 60611

Phone: (312) 227-6250, (312) 227-4724
Contact: Linda L. Duffy, RN, CPN, CPSN
Email: lduffy@luriechildrens.org
Website: www.luriechildrens.org
Chicago Shriners Hospital for Children
2211 North Oak Park Avenue

Chicago, IL 60707

Phone: 773-385-5405, 888-385-0161
Chief: Pravin Patel, MD
Director: Mary O’Gara
The Craniofacial Center
The University of Illinois at
Chicago Medical Center
811 S. Paulina
Suite 161
Chicago, IL 60612
Phone: 312-996-7546
Coordinator: Terri Kailsing, RN, MBA
Dubowitz syndrome
1616 North Wells Street
Chicago, IL
Contact: Deirdre Keane  
Phone: (708) 476-5009
North Shore Senior Center
161 Northfield Rd.
Northfield, IL 60093
Contact: Elaine C. McCaffrey
Phone: (773) 631-8818
Contact: Jean Draths
Phone: (847) 287-5564
Email: jeandraths@gmail.com 
Illinois Cochlear Implant Chapter
Meets on the 3rd Saturday of odd numbered months.
Plymouth Place (Dole Hall)
315 N. La Grange Rd.
La Grange Park, IL 60526
Contact: Janet Tusk
Email: ICIC.info.and.inquiries@gmail.com
Phone: (312) 971-7026
Contact: Ed O’Brien   
Developmental Disabilities
The Arc of Illinois
20901 South Lagrange Rd Ste 209

Frankfort, IL  60423-3213

Diaphragmatic Hernia
Contact: Kristen Aigner
Email: Illinois@cherubs.org
DiGeorge syndrome
Parent Contact: James Valdes
Phone: (630) 560-9039
Down syndrome
Champaign County Down Syndrome Network
Champaign, IL
Phone: (217) 351-4163
Livingston Area Down Syndrome Society
Chatsworth, IL
Phone: (815) 689-2202
Website: www.ladss.org
Riverbend Down Syndrome Association
Glen Carbon, IL
Phone: (618) 667-8771
Gigi’s Playhouse
Hoffman Estates, IL
Phone: (847) 885-7529
Heart of Illinois Down Syndrome Association
Morton, IL
Phone: (309) 712-4852
Website: www.hoidsa.org
Central IL Down Syndrome Organization
Normal, IL
Phone: 309-452-3264
Website: www.cidso.org
UPS for Downs
Schaumburg, IL
Phone: (847) 895-2100
Lincoln Land Down Syndrome Society
Springfield, IL
Phone: (217) 741-1832
Website: www.lldss.org
NADS
Wilmette, IL
Phone: (630) 325-9112
Website: www.nads.org
Dwarfism
Contact: Dan Verscha
Edwards syndrome 
Shorewood, IL
Contact: Ray and Cindy Cook
Phone: (815) 744-9965, (815) 690-2447
Hudson, IL
Contact: Mark and Jayne Wright
Phone: 309-726 -1035

Collinsville, IL

Contact: Richard and Michelle Wilson
Phone: (618) 343-9396
Encephalocele
Advocate Lutheran General Hospital
1775 Dempster St
Park Ridge, IL 60068
Phone: 847-723-8610
Epilepsy
Epilepsy Foundation Greater Chicago
17 N State St Suite 650
Chicago, Illinois 60602-3315
Phone: (312) 939-8622
Toll Free: (800) 273-6027
Epilepsy Foundation Greater Southern Illinois
3515 N Belt W
Belleville, Illinois 62226-5944
United States
Phone: (618) 236-2181
Toll Free: (866) 848-0472
Epilepsy Foundation North/Central Illinois Iowa & Nebraska
321 W State St #208
Rockford, Illinois 61101-1119
United States
Phone: (815) 964-2689
Toll Free: (800) 221-2689
Hydrocephalous
Contact: Sherry Reising & Katie Cook
Intellectual Disabilities
The Arc of Illinois
20901 South Lagrange Rd Ste 209
Frankfort, IL  60423-3213
Phone: (815) 464-1832
Patau syndrome
Ray and Cindy Cook
Shorewood, IL
Phone: (815) 744-9965, (815) 690-2447
Hudson, IL
Contact: Mark and Jayne Wright
Phone: (309) 726 -1035
Richard and Michelle Wilson
Collinsville, IL
Phone: (618) 343-9396
Pierre Robin Sequence
Cleft and Craniofacial Team – CPT, CFT
Shriners Hospital for Children
2211 N Oak Park Ave
Chicago, IL 60707-3351
Phone: (773) 385-5405
Fax: (773) 385-5830
Patient Age Range: 0-21
Team Leader: Pravin K. Patel, MD
Cleft Lip and Palate/Craniofacial Team – CPT, CFT
Lurie Children’s Hospital of Chicago
225 E Chicago Ave # 93
Chicago, IL 60611-2991
Phone: (312) 227-6250
Fax: (312) 227.9408
Patient Age Range: 0-21
Craniofacial Center – CPT, CFT
University of Illinois Hospital and Health Sciences System
811 S Paulina St
Mc 588 / Suite 161
Chicago, IL 60612-4353
Phone: (312) 996-7546
Fax: (312) 413-1157
Patient Age Range: 0-99
Team Leader: Mimis Cohen, MD

Coordinators: Elizabeth Ellevog, MS; Alma A. Moya, RN

Rush Craniofacial Center – CPT, CFT
1725 W Harrison St Ste 425
Chicago, IL 60612-3893
Phone: (312)563-3000
Fax: (312) 563-2514
Patient Age Range: 0-99

Team Leaders: Alvaro A. Figueroa, DDS, MS; Christina Tragos, MD
Coordinator: Nicole Heller

University of Chicago Cleft Lip and Palate Clinic and Craniofacial Anomalies Multidisciplinary Program (CAMP) – CPT, CFT
5841 S Maryland Ave
Mc 6035
Chicago, IL 60637-1447
Phone: (773) 795-4525
Fax: (773) 702-1634
Patient Age Range: 0-21
Team Leaders: Russell R. Reid, MD, PhD
Cleft Lip and Palate Team – CPT
Loyola University Ronald McDonald Children’s Hospital
2160 S 1st Ave Dept of
Maywood, IL 60153-3328
Phone: (708) 327-2365
Fax: (708) 327-3463
Patient Age Range: 0-18
Team Leader: Parit A. Patel, MD
Advocate Children’s Hospital Cleft and Craniofacial Team – CPT
1675 Dempster St Fl 3
Park Ridge, IL 60068-1110
Phone: (847) 723-7308
Fax: (847) 723-9457
Patient Age Range: 0-21
Team Leaders: Frank A. Vicari, MS, MD, FACS, FAAP; James W. Weedon, MD

Coordinators: Ady DeLaGarza, CMA; Christine Provenzano, RN

Central Illinois Orofacial Anomalies Team – CPT
507 E Armstrong Ave
Peoria, IL 61603-3201
Phone: (309) 686-1177
Fax: (309) 686-7722
Patient Age Range: 0-21
Team Leader(s): Eric T. Elwood, MD

Team Coordinator(s): Tracey Arahood

SIU Congenital Head & Neck Anomalies Clinic – CPT
747 N Rutledge St
PO Box 19653
Springfield, IL 62702-6700
Phone: (217) 545-7031
Team Fax: 217.545.2588
Team Email: ppraia@siumed.edu
Patient Age Range: 0-21
Team Leader(s): Kevin A. Calder, MD, FRCSC (Plastic Surgery)
Team Coordinator(s): Penny Praia (Coordinator/Administrator)
Urbana
Carle Cleft Lip and Palate Team – CPT
602 W University Ave
Urbana, IL 61801-2530
Team Phone: 217.383.4383
Team Fax: 217.383.4468
Patient Age Range: 0-18
Team Leader(s): Jonathan S. Bailey, MD, DMD, FACS (Oral/Maxillofacial Surgery)
Team Coordinator(s): Jayne Miller Wachtel, MA (Speech-Language Pathology)
Polymicrogyria “Westfield
Diane Roy
Prader-Willi syndrome “
Illinois PWSA
Phone: 312-804-0948
HEATHER GORDAN-OSTERMAN-
PRESIDENT
Tessier cleft “Chicago
Cleft and Craniofacial Team – CPT, CFT
Shriners Hospital for Children
2211 N Oak Park Ave
Chicago, IL 60707-3351
Team Phone: 773.385.5405
Team Fax: 773.385.5830
Patient Age Range: 0-21
Team Leader(s): Pravin K. Patel, MD (Plastic Surgery)
Team Coordinator(s): Mary M. O’Gara, MA, CCC-SLP (Speech-Language Pathology)
Cleft Lip and Palate/Craniofacial Team – CPT, CFT
Lurie Children’s Hospital of Chicago
225 E Chicago Ave # 93
Chicago, IL 60611-2991
Phone: (312) 227-6250

Fax: (312) 227-9408
Patient Age Range: 0-21
Team Leader: Arun K. Gosain, MD
Coordinator: Gloria Hicks, RN

Craniofacial Center – CPT, CFT
University of Illinois Hospital and Health Sciences System
811 S Paulina St
Mc 588 / Suite 161
Chicago, IL 60612-4353
Phone: (312) 996-7546
Fax: (312) 413-1157
Patient Age Range: 0-99
Team Leader: Mimis Cohen, MD
Rush Craniofacial Center – CPT, CFT
1725 W Harrison St Ste 425
Chicago, IL 60612-3893
Phone: (312) 563-3000
Fax: (312) 563-2514
Patient Age Range: 0-99
Team Leaders: Alvaro A. Figueroa, DDS, MS; Christina Tragos, MD
Coordinator: Nicole Heller (Plastic Surgery)
Email: nicole_b_heller@rush.edu
Website: https://www.rush.edu/services/rush-craniofacial-center
University of Chicago Cleft Lip and Palate Clinic and Craniofacial Anomalies Multidisciplinary Program (CAMP) – CPT, CFT
5841 S Maryland Ave
Mc 6035
Chicago, IL 60637-1447
Phone: (773) 795-4525
Fax: (773) 702-1634
Patient Age Range: 0-21
Team Leader: Russell R. Reid, MD, PhD
Cleft Lip and Palate Team – CPT
Loyola University Ronald McDonald Children’s Hospital
2160 S 1st Ave Dept of
Maywood, IL 60153-3328
Phone: (708) 327-2365
Fax: (708) 327-3463
Patient Age Range: 0-18
Team Leader: Parit A. Patel, MD
Advocate Children’s Hospital Cleft and Craniofacial Team – CPT
1675 Dempster St Fl 3
Park Ridge, IL 60068-1110
Phone: (847) 723-7308
Fax: (847) 723-9457
Patient Age Range: 0-21
Team Leaders: Frank A. Vicari, MS, MD, FACS, FAAP; James W. Weedon, MD

Coordinators: Christine Provenzano, RN

Central Illinois Orofacial Anomalies Team – CPT
507 E Armstrong Ave
Peoria, IL 61603-3201
Phone: (309) 686-1177
Fax: (309) 686-7722
Patient Age Range: 0-21
Team Leader: Eric T. Elwood, MD

Team Coordinator: Tracey Arahood

SIU Congenital Head & Neck Anomalies Clinic – CPT
747 N Rutledge St
PO Box 19653
Springfield, IL 62702-6700
Phone: (217) 545-7031
Fax: (217) 545-2588
Patient Age Range: 0-21
Team Leader: Kevin A. Calder, MD, FRCSC

Coordinator: Penny Praia

Carle Cleft Lip and Palate Team – CPT
602 W University Ave
Urbana, IL 61801-2530
Phone: (217) 383-4383
Fax: (217) 383-4468
Patient Age Range: 0-18
Team Leader: Jonathan S. Bailey, MD, DMD, FACS

Coordinator: Jayne Miller Wachtel, MA

Trisomy 9
Shorewood, IL
Contact: Ray and Cindy Cook
Phone: (815) 744-9965, (815) 690-2447
Hudson, IL
Contact: Mark and Jayne Wright
Phone: 309-726 -1035
Collinsville, IL
Contact: Richard and Michelle Wilson
Phone: (618) 343-9396
Turner’s syndrome
Endocrinology
Contact: Dr. Mary L. Kreiter, MD
Pediatric Endocrinology
880 W Central Rd #6400
Arlington Heights, Illinois  60005
Phone: (847) 390-0330
Pediatric Endocrionology
225 E. Chicago Ave.
Chicago, Illinois  606111
Contact: Dr. Wendy Brickman
Phone: (800)543-7362
Pediatric Endocrinology
225 E. Chicago Ave
Chicago, Illinois  60611
Contact: Dr. Rachel Levin
Phone: (800)543-7362
Endocrinology
5841 South Maryland Avenue
Chicago, Illinois  60637
Contact: Dr. Robert Rosenfield
(773)702-1234
Cardiology
Dr. Luciana Young
Pediatric Cardiology
225 E. Chicago Ave #21
Chicago, Illinois  60611
Phone: (312) 227-4100
Clinics
Lurie Children’s Hospital
225 E. Chicago Ave,
Chicago, IL 60611
Phone: 800-543-7363
Contact: Luciana Young, M.D.
Online Support:
Achondroplasia: LPA District 6
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Illinois Center For Autism
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: Cerebral Palsy PARENTS Information Group, UP 
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: Illinois Cherubs- Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: Di George Syndrome, 22q11.2 Deletion, Digeorge, VCFS etc
Down syndrome: Heart of Illinois Down Syndrome Association HOIDSA
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: Edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Awareness And Support Pekin Illinois
Hydrocephalus: State of Illinois Hydrocephalus Association Community Network
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Illinois Spina Bifida Association
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families 
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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