Georgia

Suggest a Resource

Achondroplasia
Contact: Jake Brasfield
Email: lpa.jgbrasfield@gmail.com

 

Angelman syndrome
Early Intervention
Babies Can’t Wait Program
Department of Human Resources
2 Peachtree Street, 11.217
Atlanta, GA, 30303-3186
Phone: (888) 651-8224, (404) 657-2726
Website: http://www.dph.georgia.gov/Babies-Cant-Wait

Epilepsy Foundation of Georgia
6065 Roswell Road, NE, Suite 715
Atlanta,  GA, 30328
Phone: (800) 527-7105, (404) 527-7155
Parent Training and Information Center (PTI)
Parent to Parent of Georgia, Inc.
3070 Presidential Parkway, Suite 130
Atlanta, GA, 30340
Phone: (800) 229-2038
Speech, Language, and Hearing
Georgia Speech-Language-Hearing Association
925B Peachtree St NE, Suite 620
Atlanta, GA 30309
Phone: (404) 496-5559
Autism
Autism Center for Children
429 Creekstone Rdg.

Woodstock, GA 30188

Phone: (678) 996-4998

Autism Society of Georgia

8343 Roswell Rd. #339

Atlanta, GA 30350
Phone: (404) 994-3866, (877) 404-2742
Contact: Ray Johnson

Center for New Beginnings

853 Liberty St. P.O. Box 1066

Waynesboro, GA 30830
Phone: (706) 437-0505

Contact: Sarah Ashe
Support:

A Place of Our Own Autism Tutoring Center

25 East Broad Street

Newnan, GA 30263

Phone: (678) 343-1336

Contact: Tracee Sigler

Cobb & Surrounding Areas Parent Support Group

Starbucks 1207 Johnson Ferry Road

Marietta, GA 30068

Phone: (770) 861-8800
Blind
Educational Services:
Georgia State Department of Education: Special Education Services and Supports
1870 Twin Towers East
Atlanta, GA 30334-5040
Phone: (404) 656-3963
Fax: (404) 651-6457
Georgia Academy for the Blind
2895 Vineville Avenue
Macon, GA 31204
Phone: (478) 751-6083
Fax: (478) 751-6659
NLS Library:
Bainbridge Subregional Library for the Blind and Physically Handicapped, Southwest Georgia Regional Library
301 South Monroe Street
Bainbridge, GA 39819-4029
Phone: (229) 248-2680
Fax: (229) 248-2670
Toll-Free: (800) 795-2680
TDD/TTY: (229) 248-2665
Other Agencies:
Georgia Libraries for Accessible Statewide Services
1 Margaret Mitchell Sq
4th Floor
Atlanta, GA 30303
Phone: (404) 657-1452
Fax: (404) 657-1459
Toll-Free: (800) 248-6701
American Foundation for the Blind
739 West Peachtree Street NW
Suite 250
Atlanta, GA 30308
Phone: (404) 525-2303
Fax: (404) 659-6957
Center for the Visually Impaired
739 West Peachtree Street, N.W.
Atlanta, GA 30308
Phone: (404) 875-9011
Fax: (404) 607-0062
DeKalb County School System: Department of Support Services
1701 Mountain Industrial Boulevard
Stone Mountain, GA 30083
Phone: (678) 676-0035
Fax: (678) 676-0710
Georgia Babies Can’t Wait Program
Georgia Department of Health
Two Peachtree, 11th Floor
Atlanta, GA 30303
Phone: (404) 657-2850
Fax: (404) 657-2726
TDD/TTY: (888) 651-8224
Georgia Instructional Materials Center
Division for Special Education Services and Supports
Georgia Department of Education
1870 Twin Towers East
205 Jesse Hill Jr. Drive, SE
Atlanta, GA 30334
Phone: (404) 463-4462
Fax: (404) 651-6457
Georgia Lions Camp Inc.
Georgia Lions Camp Inc. 5626
Waycross Road, Georgia 31
Phone: (912) 283-4320
Fax: (912) 283-5130
Toll-Free: (888) 297-1175
Contact: Laura Walker
Georgia Organization of Parents of Blind Children
2503 Lorne Ct SW
Marietta, GA 30064
Phone: (404) 465-1284
Georgia Project for Assistive Technology
1870 Twin Towers East
205 Jesse Hill Jr. Drive, SE
Atlanta, GA 30334
Phone: (404) 656-6318
Fax: (404) 651-6457
Georgia Sensory Assistance Project
Dept. of Educational Psychology and Special Education
Georgia State University
PO Box 3979
Atlanta, GA 30302-3979
Fax: (706) 542-5348
Toll-Free: (800) 597-2356
Helen Keller National Center for Deaf-Blind Youths and Adults: Southeastern Region Office
P.O. Box 380
Concord, GA 30206
Phone: (516) 393-7733
Medical College of Georgia Eye Clinic
1120 15th Street
Department of Ophthalmology
School of Medicine
Augusta, GA 30912-3400
Phone: (706) 721-2020
Fax: (706) 721-1156
Prevent Blindness Georgia
739 West Peachtree Street NW
Suite 200
Atlanta, GA 30308-1137
Phone: (404) 266-2020
Fax: (404) 266-0860
Toll-Free: (800) 477-4488
Savannah Center for Blind and Low Vision, previously Savannah Association for the Blind
1141 Cornell Avenue
Savannah, GA 31406
Phone: (912) 236-4473
Fax: (912) 234-9286
Walton Options for Independent Living
948 Walton Way
Augusta, GA 30903
Phone: (706) 724-6262
Fax: (706) 724-6262
Toll-Free: (877) 821-8400
Rehabilitation Services:
Emory Eye Center: Ned S. Witkin Vision
1365B Clifton Road, N.E.
Atlanta, GA 30322
Vision Rehabilitation Services
3830 South Cobb Drive
Suite 125
Smyrna, GA 30080
Phone: (770) 432-7280
Fax: (770) 432-5457
Cerebral Palsy
UCP of Georgia
Address 3300 NE Expressway Building 9
Atlanta, GA 30341
Phone: (770) 676-2000
Website http://www.ucpga.org
Twitter: @UCPGa
CHARGE syndrome
Contact: Alexa Burtley
Congenital Heart Defect 
Emory Adult Congenital Heart Center
Emory University Hospital – Heart & Vascular Clinic
Phone: (404) 778-5545
Medical Director: Wendy M. Book, MD
Cleft Palate and/or Cleft Lip
Center for Craniofacial Disorders – CPT, CFT
Children’s Healthcare of Atlanta
5455 Meridian Marks Rd Ste 200
Atlanta, GA 30342-4722
Phone: (404) 785-5437
Fax: (404) 785-3894
Patient Age Range: 0-99
Team Leaders: Fernando D. Burstein, MD; John E. Riski, PhD, CCC-SLP

Coordinator: Bonnie B. Boerema, MSN, CPNP

Craniofacial Center – CPT, CFT
Children’s Hospital of Georgia at Augusta University
HB-5040
1446 Harper St
Augusta, GA 30912-0001
Phone: (706) 721-1787
Fax: (706) 721-1799

Patient Age Range: 0-92
Team Leaders: Daniel Levy-Bercowski, DDS, MSD; Jack C. Yu, DMD, MD, MS Ed
Coordinator: Debora Norton, RN

Team Email: dnorton@augusta.edu
Crouzon syndrome
Children’s Healthcare of
Atlanta at Scottish Rite
Center for Craniofacial Disorders
 5455 Meridian Mark Rd., Suite. 200
Atlanta, GA 30342

Phone: (800) 848-9049, (404) 785-2239

Team Leaders: Fernando D. Burstein, MD, Joseph Williams, MD
Coordinator: Bonnie Boerema, CPNP
Dubowitz syndrome
Georgia State Office
Phone: (404) 636-0288
Contact:Jeff Bonnell   
Atlanta Buckhead Chapter
Cathedral Towers
2820 Peachtree Rd NW
Atlanta, GA 30305
Phone: (404) 636-0288
Contact: Jeff Bonnell  
Email: CJBNATL@gmail.com 
University Hospital
1350 Walton Way (Dining Rms 1-3)
Augusta, GA 30901
Contact: Gayle Tison
Phone: 706-863-8721
Bulloch County
Phone: 404-636-0288
Contact: Jeff Bonnell
NW Metro Atlanta Chapter
William G. Long Senior Center
223 Arnold Mill Rd.
Woodstock, GA 30188
Contact: Rebecca Kendall   
Developmental Disabilities
The Arc Georgia
PO Box 91051
Atlanta, GA  30364
Phone: (470) 222-6088
DiGeorge syndrome
Atlanta Metro Area 22q Family Support Network
Parent Coordinator: Toni R. Peterson
Phone: (470) 765-6707
Down Syndrome
Down Syndrome Association of Atlanta
Atlanta, GA
Phone: (404) 320-3233
Website: www.dsaatl.org
Upside of Downs
Augusta, GA
Phone: (706) 799-5347
Dwarfism
Contact: Jake Brasfield
Edwards syndrome 
Canton, GA
Phone: (708) 278-6000
Contact: Erin Richardson
Epilepsy
Epilepsy Foundation Georgia
6065 Roswell Rd #715
Atlanta, Georgia 30328-4030
Phone: (404) 527-7155
Toll Free: (800) 527-7105
Hydrocephalous
Atlanta Area
Contacts: Diana Ashworth, Larissa Olivieri
Intellectual Disabilities
The Arc Georgia
PO Box 91051
Atlanta, GA  30364
Phone: (470) 222-6088
Website: ga.thearc.org
Patau Syndrome
Canton, GA
Phone: (708) 278-6000
Contact: Erin Richardson
Pierre Robin Sequence
Center for Craniofacial Disorders – CPT, CFT
Children’s Healthcare of Atlanta
5455 Meridian Marks Rd Ste 200
Atlanta, GA 30342-4722
Phone: (404) 785-5437

Fax: (404) 785-3894
Patient Age Range: 0-99
Team Leaders: Fernando D. Burstein, MD; John E. Riski, PhD, CCC-SLP
Coordinator: Bonnie B. Boerema, MSN, CPNP

Craniofacial Center – CPT, CFT
Children’s Hospital of Georgia at Augusta University
HB-5040
1446 Harper St
Augusta, GA 30912-0001
Phone: (706) 721-1787
Fax: (706) 721-1799
Patient Age Range: 0-92
Team Leaders: Daniel Levy-Bercowski, DDS, MSD; Jack C. Yu, DMD, MD, MS Ed

Coordinator: Debora Norton, RN

Team Email: dnorton@augusta.edu
Roswell
Polymicrogyria
Contact: Krista Elema
Gainesville
Contact: Kandis Froebe
Temple
Contact: Wanda Summerville
Prader-Willi syndrome
Georgia PWA
505 Lakeland Plaza, #327
Cumming GA 30040
Phone: (770) 886-2334
Director: Debbie Lange
Spina Bifida
SBA of Georgia
5072 Bristol Industrial Way
Suite F
Buford, GA 30518
Phone: (770) 939-1044
Tessier Cleft 
Center for Craniofacial Disorders – CPT, CFT
Children’s Healthcare of Atlanta
5455 Meridian Marks Rd Ste 200
Atlanta, GA 30342-4722
Phone: (404)785-5437
Fax: (404) 785-3894
Patient Age Range: 0-99
Team Leaders: Fernando D. Burstein, MD; John E. Riski, PhD, CCC-SLP
Coordinator: Bonnie B. Boerema, MSN, CPNP
Children’s Hospital of Georgia at Augusta University
HB-5040
Craniofacial Center – CPT, CFT
1446 Harper St
Augusta, GA 30912-0001
Phone: (706) 721-1787
Fax: (706) 721-1799
Patient Age Range: 0-92
Team Leaders: Daniel Levy-Bercowski, DDS, MSD; Jack C. Yu, DMD, MD, MS Ed

Coordinator: Debora Norton, RN

Trisomy 9
Canton, GA
Phone: 708-278-6000
Contact: Erin Richardson
Turner’s syndrome
Pediatric Gastroenterology
993 Johnson Ferry Rd NE d440
Atlanta, Georgia  30342
Phone: (404) 257-0799
Contact: Dr. Jeffery Lewis
Diabetic Care
Emory Children’s Center
2015 Upper Gate Drive NE
Atlanta, Georgia 30322
Phone: (404) 778-2400
Fax: (404) 727-3423
Contact: Aretha Samuels
5455 Meridian Mark Road NE Suite 130
Atlanta, Georgia  30342
Phone: (404)255-2033
Contact: Dr. Paula Harmon
Pediatrics
595 Hurricane Shoals Rd., N.W., Suite 300
Lawrenceville, Georgia  30046
Phone: (770)995-0823
Contact: Dr. Paula Harmon
Children’s Healthcare of Atlanta
Emory Children’s Center
2015 Upper Gate Drive NE,
Atlanta, GA 30322
Doris Fadoju, M.D.
Phone: (404) 785-5437
Online Support:
Achondroplasia:LPA District 13
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: North Georgia Autism Support Group, South Georgia Autism Families
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: United Cerebral Palsy of Georgia, Cerebral Palsy
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page , The Arc Georgia
Diaphragmatic Hernia: State of Georgia Cherubs- Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: DiGeorge Syndrome, 22q11.2 Deletion, DiGeorge, VCFS etc
Down syndrome: Down syndrome Support for Mommies, Parents of Children with Down syndrome, National Down Syndrome Congress
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: Edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy:
Hydrocephalus: Hydrocephalus Support Group, Hydrocephalus , State of Georgia Hydrocephalus Association Community Network 
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group, The Arc Georgia
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Parents Group, Spina Bifida Support Group, Spina Bifida Association of Georgia
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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