Delaware

Suggest a Resource

 

Achondroplasia
Contact: Stephanie Brandon
Email: sbrandon@d3lpa.org
Website: LPA District 3

 

Angelman syndrome
Delaware Assistive Technology Initiative
461 Wyoming Road
Newark, DE, 19716
Phone: (800) 870-3284, (302) 651-6790
TTY: (302) 831-0354
Email: dati@asel.udel.edu
Website: http://www.dati.org

Epilepsy Foundation of Delaware
Tower Office Park 240 N. James Street, Suite 104
Newport, DE, 19804
Phone: (877) 369-2266, (302) 999-9313
Email: efd@efde.org
Website: http://epilepsy.com/delaware

Delaware Speech-Language-Hearing Association
P.O. Box 7383
Newark, DE, 19711
Email: dshaweb@dsha.org

 

Austism
Autism Delaware
924 Old Harmony Road Suite 201
Newark, DE 19713
Phone: (302) 224-6020
Email: delautism@delautism.org
Website: http://www.delautism.org

Autism Delaware
16394 Samuel Paynter Blvd Suite 201
Milton, DE 19968
Phone: (302) 644-3410
Email: delautism@delautism.org
Website: http://www.delautism.org

Support Groups:
Alfred I. DuPont Hospital for Children
1600 Rockland Road P.O. Box 269
Wilmington, DE 19803
Phone: (302) 651 4511
Contact: Rhonda S. Walter, M.D.
Website: http://www.nemours.org/hospital/de/aidhc

Meadowwood Hospital
575 South Dupont HIghway
New Castle, DE 19720
Phone: (302) 328-3330
Fax: (30) 328-9336
Email: bmason@meadowwoodhospital.com
Website: http://www.meadowwoodhospital.com

Delaware Health and Social Services
Division of Developmental Disabilities Services
1056 South Governor’s Avenue, Suite 101
Dover, DE 19904
Phone: (302) 744-9600
Website: http://www.dhss.delaware.gov/dhss/ddds/

Additional Resources: https://www.autismspeaks.org/resource-guide/state/DE

 

Blind
Educational Services:
Delaware Department of Education
Exceptional Children Resources
Teaching and Learning Branch
John G. Townsend Building 401 Federal Street
Dover, DE 19901
Phone: (302) 735-4210
Fax: (302) 739-2388
Website: http://www.doe.k12.de.us/infosuites/students_family/specialed/default.shtml

Delaware Department of Health and Social Services
Division for the Visually Impaired
1901 North Dupont Highway Biggs Building
New Castle, DE 19720
Phone: (302) 255-9800
Fax: (302) 255-9388
Email: DVIIntake@state.de.us
Website: http://dhss.delaware.gov/dhss/dvi/

Instructional Materials Center
Delaware Materials Center Division for the Visually Impaired
300 Cornell Drive Suites A3 and A4
Wilmington, DE 19801
Phone: (302) 577-2083

Rehabilitation Services:
Delaware Department of Health and Social Services
Division for the Visually Impaired
1901 North Dupont Highway Biggs Building
New Castle, DE 19720
Phone: (302) 255-9800
Fax: (302) 255-9388
Email: DVIIntake@state.de.us
Website: http://dhss.delaware.gov/dhss/dvi/

NLS Library:
Delaware Library Access Services
121 Martin Luther King Blvd.
North Dover, DE 19901
Toll-Free: (800) 282-8676
Email: debph@lib.de.us
Website: http://libraries.delaware.gov/dlas.shtml

Other Agencies in Delaware:
Blindsight Delaware
2915 Newport Gap Pike Landis Lodge Building
Wilmington, DE 19808
Phone: (302) 998-5913
Toll-Free: (888) 777-3925
Fax: (302) 691-5810
Email: contactus@blindsightdelaware.org
Website: http://www.blindsightdelaware.org

Delaware Birth to 3 Early Intervention System
Department of Health and Social Services Division of Management Services
1901 N. Du Pont Highway, Main Bldg.
New Castle, DE 19720
Phone: (302) 255-9135
Fax: (302) 255-4407
Website: http://www.dhss.delaware.gov/dhss/dms/epqc/birth3/directry.html

Delaware Council of the Blind and Visually Impaired
27 Miles Road Claymont, DE 19703-1236
Phone: (302) 798-8192
Website: http://www.dcbvi.org

Delaware Instructional Materials and Resource Center
300 Cornell Drive Suites A3 and A4
Wilmington, DE 19801
Phone: (302) 577-2083
Website: http://dhss.delaware.gov/dhss/dvi/materctr.html

 

Cerebal Palsy
UCP of Delaware
700A River Rd.
Wilmington, DE 19809
Phone (302) 764-2400
Twitter: @UCPofDE
Website: http://ucpde.org

 

CHARGE syndrome
Contact: Maureen Robinette
Email: marobinette@gmail.com

 

Cleft Palate and/or Cleft Lip
Wilmington A.I. duPont Hospital for Children Cleft Palate and Craniofacial Team – CPT, CFT
1600 Rockland Rd
Wilmington, DE 19803-3607
Phone: 302.651.4310
Fax: 302.651.5764
Patient Age Range: 0-21
Team Leader: Joseph A. Napoli, MD, DDS
Coordinator: Courtney Watson, MSN, CPNP
Email: cwatson@nemours.org
Website: http://www.nemours.org/service/medical/cleftandcraniofacial.html

 

Dubowitz syndrome
Wilmington Chapter
Contact: Linda Heller
Email: hlade@comcast.net
Website: http://www.hlade.org

 

Developmental Disabilities
The Arc of Delaware
2 S Augustine St
Wilmington, DE 19804-2504
Phone: (302) 996-9400
Email: tolson@thearcofde.org
Facebook: The Arc of Delaware
Website: http://www.thearcofdelaware.org/

 

Down Syndrome
Down Syndrome Association of Delaware
PO Box 747
Middletown, DE
Phone: (302) 995-1004
Website: http://www.dsadelaware.org

 

Dwarfism
Contact: Stephanie Brandon
Email: sbrandon@d3lpa.org
Website: http://www.d3lpa.org/

 

Edwards syndrome
Contact: Gerri Alston Meggett
Ft. Meade, MD
Phone: (97) 821-8463
Email: gerri.meggett@yahoo.com

 

Epilepsy
Epilepsy Foundation Delaware
Tower Office Park 240 N James St #104
Newport, Delaware 19804-3167
Phone: (302) 999-9313
Toll Free: (877) 369-2266

 

Hydrocephalous
Middletown Area
Contact: Darlene Turner
Email: DelawareCommunity@hydroassoc.org

 

Intellectual Disabilities
The Arc of Delaware
2 S Augustine St
Wilmington, DE 19804-2504
Phone: (302) 996-9400
Email: tolson@thearcofde.org
Website: http://www.thearcofdelaware.org/

 

Patau syndrome
Contact: Gerri Alston Meggett
Ft. Meade, MD
Phone: (978) 821-8463
Email: gerri.meggett@yahoo.com

 

Pierre Robin Sequence
Wilmington A.I. duPont Hospital for Children Cleft Palate and Craniofacial Team – CPT, CFT
1600 Rockland Rd
Wilmington, DE 19803-3607
Phone: 302.651.4310
Fax: 302.651.5764
Patient Age Range: 0-21
Team Leader: Joseph A. Napoli, MD, DDS
Coordinator: Courtney Watson, MSN, CPNP
Email: cwatson@nemours.org
Website: http://www.nemours.org/service/medical/cleftandcraniofacial.html 

 

Polymicrogyria
Contact: Middleton Victoria Kleczewski
Email: vialca82@yahoo.com

 

Prader-Willi syndrome
Delaware PWSA
Contact: Tanya and Steve Kaminski
Phone: 302-245-3481
Email: pwsdelaware@yahoo.com

 

Tessier Cleft
Wilmington A.I. duPont Hospital for Children Cleft Palate and Craniofacial Team – CPT, CFT
1600 Rockland Rd
Wilmington, DE 19803-3607
Phone: 302.651.4310
Fax: 302.651.5764
Patient Age Range: 0-21
Team Leader: Joseph A. Napoli, MD, DDS
Coordinator: Courtney Watson, MSN, CPNP
Email: cwatson@nemours.org
Website: http://www.nemours.org/service/medical/cleftandcraniofacial.html

 

Trisomy 9
Contact: Gerri Alston Meggett
Ft. Meade, MD
Phone: (978) 821-8463
Email: gerri.meggett@yahoo.com

 

Online Support:
Achondroplasia: LPA District 3
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Autism Support Group Delaware,
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: Cerebral Palsy Program of Nemours, Delaware Valley
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: Delaware Cherubs-Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: Di George Syndrome, 22q11.2 Deletion, Digeorge, VCFS etc
Down syndrome: Down Syndrome Association of DelawareRun for the Buds
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Support Group
Hydrocephalus: State of Delaware Hydrocephalus Community Network
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group, The Arc of Delaware
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Association of Alabama
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

 

 

 

 

 

 

 

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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