Colorado

Suggest a Resource
Achondroplasia
Contact: Gaill Blackburn
Email: District10LPA@gmail.com
Website: http://lpadistrict10.org/

Angelman syndrome
Epilepsy Foundation of Colorado, Inc.
234 Columbine Street, Suite 333
Denver, CO, 80206-4711
Phone: (303) 377-9774, (888) 378-9779
Intellectual & Developmental Disabilities
The Arc of Colorado
8000 E. Prentice Avenue, Suite D-1
Greenwood Village, CO, 80111
Phone: (303) 864-9334, (800) 333-7690
Special Format Library
Colorado Talking Book Library
180 Sheridan Boulevard
Denver, CO, 80226-8097
Phone: (303) 727-9277, (800) 685-2136
Speech, Language, and Hearing
Colorado Speech-Language-Hearing Association
P.O. Box 345
Sedalia, CO, 80135
Phone: (720) 733-9097

Autism
Arc in Jefferson County

8725 West 14th Ave. Suite 100

LakewoodCO 80215

Phone: (303) 232-1338
Website: http://arcjc.org
Autism & Asperger Connections
Colorado SpringsCO
Phone: (719) 598-0992
Break Through Interventions
4441 S. Xeric Way

DenverCO 80237

Phone: (720) 341-2324
Contact: Annette Nunez

Roots Colorado
7087 S Madison Way

CentennialCO 80122

Phone: (303) 904-2065

Support:Sibshop

1185 W. 124th Ave.

WestminsterCO 80234

Phone: (303) 252-7199
Contact: Pam Levett

GRASP Support Group Denver
DenverCO 80202

Phone: (303) 995-0951
Blind
Educational Services:
Colorado Department of Education Exceptional Student Services Unit
201 East Colfax Avenue
Denver, CO 80203
Phone: (303) 866-6681
Fax: (303) 830-0792
School for the Blind
Colorado School for the Deaf and the Blind
33 North Institute Street
Colorado Springs, CO 80903-3599
Phone: (719) 578-2100
Fax: (719) 578-2239
NLS Library
Colorado Talking Book Library
180 Sheridan Boulevard
Denver, CO 80226-8097
Phone: (303) 727-9277
Fax: (303) 727-9281
Toll-Free: (800) 685-2136
Other Agencies:
Adaptive Adventures
1315 Nelson Street Unit 1
Lakewood, CO 80215
Phone: (303) 679-2770
Toll-Free: (877) 679-2770
Anchor Center for Blind Children
2550 Roslyn Street
Denver, CO 80238
Phone: (303) 377-9732
Fax: (303) 377-9744
Center for Independence
740 Gunnison Avenue
Grand Junction, CO 81501
Phone: (970) 241-0315
Fax: (970) 245-3341
Toll-Free: (800) 613-2271
TDD/TTY: (970) 241-8130
Challenge Aspen
PO BOX 6639
Snowmass Village, CO 81615
Phone: (970) 923-0578
Fax: (970) 923-7338
Toll-Free: (800) 530-3901
Cherry Creek School District
4700 S. Yosemite Street
Greenwood Village, CO 80011
Phone: (720) 747-2918
Fax: (720) 747-2988
Colorado Center for the Blind
2233 W. Shepperd Avenue
Littleton, CO 80120
Phone: (303) 778-1130
Colorado Services for Children and Youth with Combined Vision and Hearing Loss
Colorado department of Education
Exceptional Student Leadership Unit
1560 Broadway, Suite 1175
Denver, CO 80202
Online Support:

Achondroplasia: LPA District 10
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Family Support Center-Autism Services, Colorado Springs
Autism Center of Boulder, Western Colorado Autism Connection
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: Cerebral Palsy PARENTS Information Group, Cerebral Palsy Association of Colorado Springs
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page 
Diaphragmatic Hernia: Colorado Cherubs- Congenital Diaphragmatic Hernia Charity
DiGeorge syndrome: Di George Syndrome, 22q11.2 Deletion, Digeorge, VCFS etc
Down syndrome: Colorado Down Syndrome, Northern Colorado Down Syndrome Association
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy: Epilepsy Support In Colorado, Meet and Greet-Colorado (Epilepsy)
Hydrocephalus: State of Colorado Hydrocephalus Association Community Network
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Colorado Fetal Care-Spina Bifida Support
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

 

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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