Arkansas

Suggest a Resource

Achondroplasia
Contact: Chandler Crews
Angelman syndrome
Assistive Technology
ICAN Arkansas
900 W. 7th St.
Little Rock, AR 72201
Phone: (501) 666-8868, (800) 828-2799
Epilepsy
Arkansas Epilepsy Program
#2 Lile Ct., Suite 100
Little Rock, AR 72205
Phone: (501) 227-5061, (888) 527-5061
Arkansas Speech-Language-Hearing Association
PO Box 24103
Little Rock, AR 72221
Phone: (501) 244-0621
Autism

A Child’s Voice Autism Foundation

PO Box 685

Monticello, AR 71657

Phone: (870) 367-5143
Contact: Connie LePhiew
Arkansas Autism Connection
1005 Beau Terre Dr. Suite 308

Bentonville, AR 72719

Phone: (479) 254-1995
Contact: Edyth Woodridge

Specialty Pediatric and Autism Resource Clinic of Arkansas

5901 Kersey Ln.

Jonesboro, AR 72404
Phone: (870) 972-1251

Autism Association of Northeast Arkansas

1702 Stone Street Suite A

Jonesboro, AR 72401

Phone: (866) 691-2784, (870) 336-2784

Contact: Shelby Knight

Support Groups:
Conway Asperger’s Support Group

Little Rock Autism Families Meet-up Group

55 Fontenay Circle

Little Rock, AR 72223

Phone: (501) 551-1126
Contact: Marjorie Greenberg

Arkansas Autism Connection

1005 Beau Terre Dr. Suite 308

Bentonville, AR 72719

Phone: (479) 254-1995
Contact: Edyth Woodridge
Educational Services:
Arkansas Department of Education: Special Education Department
1401 West Capitol
Victory Building
Suite 450
Little Rock, AR 72201
Phone: (501) 682-4221
Fax: (501) 682-4313
School for the Blind
Arkansas School for the Blind
2600 West Markham
Little Rock, AR 72205
Phone: (501) 296-1810
Fax: (501) 296-1831
Toll-Free: (800) 362-4451
TDD/TTY: (501) 296-1833
Rehabilitation Services:
Arkansas Department of Human Services: Division of Services for the Blind
700 Main Street, Slot 101
P.O. Box 3237
Little Rock, AR 72203-3237
Phone: (501) 682-5463
Fax: (501) 682-0330
Toll-Free: (800) 960-9270
TDD/TTY: (501) 682-0093
NLS Library:
Library for the Blind and Physically Handicapped, Arkansas State Library
900 West Capitol Ave suite 100
Little Rock, AR 72201-3108
Phone: (501) 682-1155
Fax: (501) 682-1529
Toll-Free: (866) 660-0885
TDD/TTY: (501) 682-1002
Other Agencies:
Easter Seals Arkansas
3920 Woodland Heights Road
Little Rock, AR 72212-2495
Phone: (501) 227-3611
Fax: (501) 227-3601
Toll-Free: (877) 533-3600
TDD/TTY: (501) 227-3686
First Connections: Arkansas Infant & Toddler Program
Department of Health & Human Services
Donaghey Plaza North
108 East Seventh Street
Slot # N 501
Little Rock, AR 72201
Phone: (501) 682-8665
Fax: (501) 682-8380
TDD/TTY: (501) 682-1332
Jones Eye Institute
University of Arkansas for Medical Sciences
4301 West Markham
Little Rock, AR 72205
Phone: (501) 686-5822
Fax: (501) 686-8560
World Services for the Blind
2811 Fair Park Boulevard
Little Rock, AR 72204
Phone: (501) 664-7100
Fax: (501) 664-2743
Toll-Free: (800) 248-0734
Cerebral Palsy
UCP of Arkansas
9720 N Rodney Parham Rd.
Little Rock, AR 72227
Phone: (501) 224-6067
Twitter: @UCPArkansas
Website: http://www.ucpark.org
Congenital Heart Defect
Adult Congenital Heart Disease Program
Arkansas Children’s Hospital
Little Rock, AR
Phone: (501) 364-1479
Medical Director: R. Thomas Collins, II, MD
Cleft Lip and/or Pallete
Little Rock
ACH Cleft Lip and Palate Team – CPT
Arkansas Children’s Hospital
1 Childrens Way Lot 668
Little Rock, AR 72202-3500
Phone: (501) 364-1658

Fax: (501) 364-1935

Patient Age Range: 0-99
Team Directors: Larry D. Hartzell, MD; Gerald Bradley Schaefer, MD
Team Coordinator: Lucia Wesley, RN
Little Rock
Craniomaxillo Facial Team – CPT, CFT
1 Childrens Way
Slot 707
Little Rock, AR 72202-3500
Phone: (501) 364-5775

Fax: (501) 364-1649

Patient Age Range: 0-99
Team Directors: Roop Gill, MD; Michael S. Golinko, MD, MA
Team Coordinator: Tammy Roberson, RN

Crouzon syndrome

Arkansas Children’s Hospital
1 Children’s Way, Mail slot 707
Little Rock, Arkansas 72202-3591
Vascular Anomalies Center
Gresham Richter, MD
Phone: (501) 364-7546
Team Coordinator: Amber Smith
Cleft Lip and Palate Clinic
Larry D. Hartzell, MD
Phone: (501) 364-1658
Coordinator: Lucia Wesley, RN
Center for Craniofacial Anomalies
Bradley Schaefer, MD
Phone: (501) 364-5775
Coordinator: Samantha Hathaway

 

Developmental Disabilities

The Arc of Arkansas
2004 Main Street
Little Rock, AR 72206-1526
Phone: (501) 375-7770
Email: thearcarkansas@arcark.org

Down Syndrome

Down Syndrome Connection of Northwest Arkansas
Springdale, AR
Phone:479-644-9208

Website: www.dscnwa.com

Dwarfism

Contact: Chandler Crews

Edwards syndrome

Contact: Jill Davis
Fayetteville, AR
Phone: (501) 545-0638

Epilepsy

Epilepsy Foundation
Phone: (301) 459-3700
Toll Free: (800) 332-1000

 

Intellectual Disabilities

The Arc of Arkansas
2004 Main Street
Little Rock, AR 72206-1526
Phone: (501) 375-7770
Email: thearcarkansas@arcark.org

Patau syndrome

Contact: Jill Davis
Fayetteville, AR
Phone: (501) 545-0638

Pierre Robin Sequence

Little Rock
ACH Cleft Lip and Palate Team – CPT
Arkansas Children’s Hospital
1 Childrens Way Lot 668
Little Rock, AR 72202-3500
Phone: (501) 364-1658

Fax: (501) 364-1935

Patient Age Range: 0-99
Team Directors: Larry D. Hartzell, MD; Gerald Bradley Schaefer, MD
Team Coordinator: Lucia Wesley, RN
Little Rock
Craniomaxillo Facial Team – CPT, CFT
1 Childrens Way
Slot 707
Little Rock, AR 72202-3500
Phone: (501) 364-5775

Fax: (501) 364-1649

Patient Age Range: 0-99
Team Directors: Roop Gill, MD; Michael S. Golinko, MD, MA
Team Coordinator: Tammy Roberson, RN

Polymicrogyria

Northwest Arkansas:
Contact: Susan Roberts

Prader-Willi syndrome

Arkansas PWSA
501 Walker Street
Centerton, AR 72719
Phone: 870-636-3377
Contact: Sharon Barton Ayers
Tessier cleft
Little Rock
ACH Cleft Lip and Palate Team – CPT
Arkansas Children’s Hospital
1 Childrens Way Lot 668
Little Rock, AR 72202-3500
Phone: (501) 364-1658

Fax: (501) 364-1935

Patient Age Range: 0-99
Team Directors: Larry D. Hartzell, MD; Gerald Bradley Schaefer, MD
Team Coordinator: Lucia Wesley, RN
Little Rock
Craniomaxillo Facial Team – CPT, CFT
1 Childrens Way
Slot 707
Little Rock, AR 72202-3500
Phone: (501) 364-5775

Fax: (501) 364-1649

Patient Age Range: 0-99
Team Directors: Roop Gill, MD; Michael S. Golinko, MD, MA
Team Coordinator: Tammy Roberson, RN
Contact: Jill Davis
Fayetteville, AR
Phone: (501) 545-0638
Online Support:
Achondroplasia: LPA-District 7
Aicardi syndrome: Aicardi syndrome
Alobar Holoprosencephaly: Alobar Holoprosencephaly
Amniotic Band syndrome: Amniotic band syndrome (ABS)
Angelman syndrome: Angelman Syndrome Foundation
Apert syndrome: Apert International (Apert USA)
Aplasia Cutis Congenita: Aplasia Cutis Congenita Support Group
Arthrogryposis: Arthrogryposis
Asparagine Synthetase Deficiency: Asparagine Synthetase Deficiency (ASNS gene)
Ataxic Cerebral Palsy: Families with children who have Ataxic Cerebral Palsy
Autism: Autism Speaks Arkansas, Arkansas Autism Resource & Outreach Center, Arkansas Autism Network, Central Arkansas Autism Families
Bi-lateral Renal Agenesis: Bi-lateral Renal Agenesis (Potters Syndrome)
Blind: Family ConnectBlind and visually impaired support group
Bohring-Optiz syndrome: Bohring-Optiz Syndrome Connection
Cerebral Palsy: United Cerebral Palsy of Arkansas
CHARGE syndrome: CHARGE Syndrome
Congenital Heart Defect: Children with congenital heart defects, Breastfeeding Children with Congenital Heart Defects, Congenital Heart Defect Healthy Eating Group, Adults with Congenital Heart Defects 
Cleft Lip/Palate: Support Group for Adults born with Cleft Lip and Palates, Cleft Lip and Palate Foundation of Smiles, Cleft Lip & Palate Association
Clubbed Feet: Clubbed Foot support group, Club Feet Support Group for Parents
Cornelia De Lange syndrome: Cornelia De Lange Syndrome
Cortical Visual Impairment: Cortical Visual Impairment (CVI) Awareness
Crouzon syndrome: Crouzon Syndrome
Cystic Hygroma: Cystic Hygroma
Cytomegalovirus (CMV): CMV Family Support
Dandy Walker syndrome: Dandy-Walker Syndrome, Dandy Walker parents,
Deaf: Community for the Deaf and Hard of Hearing, Parents of Hearing Impaired Children
Dubowitz syndrome: Dubowitz Syndrome Network
Developmental Disabilities: Developmental Disabilities Support Page , The Arc Arkansas
Diaphragmatic Hernia: Arkansas Cherubs- Congenital Diaphragmatic Hernia Charity 
DiGeorge syndrome: DiGeorge Syndrome, 22q11.2 Deletion, DiGeorge, VCFS etc
Down syndrome: Down syndrome Support for Mommies, Parents of Children with Down syndrome, Arkansas Down syndrome Association, Down Syndrome Connection of Northwest Arkansas,  Arkansas Down Syndrome Network
Dwarfism: Dwarfism, Little People of the World Organization,
Edwards syndrome: Edwards syndrome (trisomy18), Edwards Syndrome Families & Support – Trisomy 18, Trisomy 18 Foundation Parents Connect
Encephalocele: Encephalocele Parent Support, Encephalocele Support
Epilepsy:
Hydrocephalus: Hydrocephalus Support Group, Hydrocephalus 
Hydrops Fetalis: Hydrops Fetalis Support Group, Hydrops Fetalis Parents Support Group
Intellectual Disability: Intellectual Disabilities Support Group, The Arc Arkansas
Koolen de Vries syndrome: Koolen de Vries Syndrome – 17q21.31 Microdeletion Syndrome Support Group
Limb Difference: Beautiful Limb Differences, limb difference makes no difference
Lissencephaly: Lissencephaly,  Lissencephaly Network
McCune-Albright syndrome: MAS/FD McCune-Albright Syndrome/Fibrous Dysplasia- The MAGIC Foundation, McCune Albright Syndrome and Fibrous Dysplasia
Microcephaly: Microcephaly Support Group,  Foundation for Children with Microcephaly- Official Group, Microcephaly
Moebius syndrome: Many Faces of Moebius Syndrome, Moebius syndrome Technology
Nager syndrome: Nager Syndrome
Patau syndrome: Trisomy 13 Life- Living with Patau Syndrome
Pierre Robin Sequence: Pierre Robin Sequence, Pierre Robin Sequence Support, Awareness & Research,
Polymicrogyria: Polymicrogyria (PMG) Support, PMG Awareness Organization’s Group Page (polymicrogyria)
Potocki-Shaffer syndrome: Potocki Shaffer syndrome Family Group
PPP2R5D: PPP2R5D Families
Prader-Willi syndrome: Prader Willi Syndrome Open Forum, Prader-Willi Support
Renal Agenesis: Born With A Single Kidney
Rhizomelic Chondrodysplasia Punctata (RCDP): RCDP/Rhizomelic Chondrodysplasia Punctata
Sanfilippo syndrome: Sanfilippo syndrome Support Group
Semi-lobar Holoprosencephaly: Our Olive Grace-  Semi-lobar Holoprosencephaly
Spina Bifida: Spina Bifida Parents Group, Spina Bifida Support Group
Symbrachydactyly: Symbrachydactyly, Helping Hands (Symbrachydactyly)
Tessier cleft: Tessier Clefts
Trisomy 9: Trisomy 9 Family 
Turner syndrome: Turner syndrome,  Turner Syndrome Connections 
VACTERL/VATER Association: VATER and VACTERL Association Awareness, Vacterl and vater Association group for parents and families
Ventriculomegaly:  Ventriculomegaly, Babies with ventriculomegaly

Our whole mission at Orange Socks is to be there for you.

Our whole intent is to guide you from a resources page to a forum for parents…from the links to national organizations to providing you with support where the expectant parent can be linked with a parent who has a similar situation and diagnosis. We are there to support and encourage you.

Orange Socks knows that there is no greater pain in your heart than the knowledge that your child will be born with a disability or lifelong condition, or diagnosed with one at a very young age. And it is with tremendous humility that we look forward to helping you face this challenge. Even as your heart is heavy, there’s light at the end of every tunnel. Getting to it is our job.

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