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Katie: Congenital Nephrotic Syndrome and Undiagnosed Seizure Disorder

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At 8 weeks old Katie and Eric’s daughter Emerson developed a fever, so they took her to the emergency room. Once at the E.R., they were told there was something critically wrong with Emmerson and they admitted her. After a week of testing, Emmerson was diagnosed with Congenital Nephrotic Syndrome– end stage renal disease-which is a rare genetic issue. Emerson receives 24 hour care, and does dialysis everyday. Once Emerson is big enough, she will go through a series of testing in hopes of getting a kidney transplant.

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