Prader-Willi Syndrome

We are actively collecting and updating new stories. We welcome you to check back often, and to share your story. If you or someone you know has a story to share, please contact us to add your story.

Share Your Story

Select a Category to View Stories

Click on the above dropdown to view more.

Most Recent Stories

Alyssa: Prader-Willi syndrome

Listen to Story Read Story

Immediately after Kimber was born, doctors knew there was something wrong. She slept constantly, and she was very limp. Doctors didn’t expect her to live past 6 months. After a few weeks a genetic test revealed she had Prader-Willi syndrome.

Alyssa was relieved to get this diagnosis , because this meant Kimber would live longer than the 6 months doctors predicted; those with Prader-Willi typically have an average lifespan.

Kimber has taught her parents, and those around her to love deeply and unconditionally.

[...]
Read More
Prader-Willi syndrome. Alyssa was relieved to get this diagnosis , because this meant Kimber would live longer than the 6 months doctors predicted; those with Prader-Willi typically have an average lifespan. Kimber has taught her parents, and those around her to love deeply and unconditionally.">

Posted May 2017 under Prader-Willi Syndrome.

Shirell and Danny: Prader-Willi

Listen to Story Read Story

Shirell and Danny have a 15 year old boy named Sam, who has Prader-Willi syndrome. When Sam was first born, Shirell and Danny noticed that he was floppy and looked lifeless, and the doctors discovered his issues right away. For Shirell and Danny the joys  have definitely outweighed the hardships.

[...]
Read More
Prader-Willi syndrome. When Sam was first born, Shirell and Danny noticed that he was floppy and looked lifeless, and the doctors discovered his issues right away. For Shirell and Danny the joys  have definitely outweighed the hardships.">

Posted February 2017 under Prader-Willi Syndrome.

WordPress Video Lightbox Plugin