Immediately after Kimber was born, doctors knew there was something wrong. She slept constantly, and she was very limp. Doctors didn’t expect her to live past 6 months. After a few weeks a genetic test revealed she had Prader-Willi syndrome.
Alyssa was relieved to get this diagnosis , because this meant Kimber would live longer than the 6 months doctors predicted; those with Prader-Willi typically have an average lifespan.
Kimber has taught her parents, and those around her to love deeply and unconditionally.
Shirell and Danny have a 15 year old boy named Sam, who has Prader-Willi syndrome. When Sam was first born, Shirell and Danny noticed that he was floppy and looked lifeless, and the doctors discovered his issues right away. For Shirell and Danny the joys have definitely outweighed the hardships.