When Megan and Josh’s son Edison was born, they both noticed some abnormalities, including syndactyly, immediately. Megan and Josh met with a pediatrician, who then sent Edison to a children’s hospital, where Apert syndrome was confirmed. Edison was later diagnosed with hydrocephalus.
She and her husband Jeff were told to either terminate the pregnancy, or plan a funeral. They chose to continue the pregnancy. Arabella is now a beautiful 2 year old. She was officially diagnosed with Ellis-van Creveld syndrome, a sub-type of Short Rib Polydactyly syndrome. This syndrome has a 30-50 percent survival rate.
Katherine is now expecting her third child, Shiloh. Shiloh has also been diagnosed EVC, as well as a major heart defect. They do not know if Shiloh will live, but are grateful for everyday they have with her.