Lauricia had several ultrasounds during her pregnancy that indicated her son Zacchaeus was not developing typically. Lauricia and her husband Jose found out shortly after Zacchaeus was born that he had Cornelia de Lange syndrome.
When the doctor called Jessica with test results that showed her unborn son would have Down syndrome, she immediately felt a sense of fear and anger she had never experienced before. Negative thoughts flooded her brain for days and weeks. She felt resentment and anger towards her pregnancy.
When she told her closest friends and family the news; their reactions were overwhelmingly positive and supportive. They showered her with love and told her how amazing he was going to be. And they were so right.
Dawn saw several specialists during her pregnancy, who all gave her baby a grim diagnosis. She was told he had Trisomy 13- Patau syndrome, which was described to her as a condition that is incompatible with life. She was told her son would not live past birth. She was recommend by physicians, family, and friends to terminate her pregnancy. She and her husband decided not terminate, and their son was born as a typical baby- with no complications, or conditions.
Mandy and Steven had four girls and were excited at the possibility of their fifth child being a boy. At 20 weeks, Mandy and her oldest daughter went to her doctor’s appointment and were told that something was seriously wrong with her baby. Mandy and Steven were told that the baby had a condition called Hydrops Fetalis. The doctors also had trouble finding some vital organs and noticed his heart was enlarged; they offered the option to terminate the baby. After many tests were done, they found out that the baby had Bilateral Renal Agenesis
When Tori and Matt’s daughter failed to sit up or roll over by the time she was 9 months, they started to worry. Their Pediatrician referred them to a Pediatric Developmental Specialist. Through MRI testing, they found that Tori got Cytomegolavirus (CMV) while pregnant, which resulted in their daughter having Cerebral Palsy.
Immediately after Kimber was born, doctors knew there was something wrong. She slept constantly, and she was very limp. Doctors didn’t expect her to live past 6 months. After a few weeks a genetic test revealed she had Prader-Willi syndrome.
Alyssa was relieved to get this diagnosis , because this meant Kimber would live longer than the 6 months doctors predicted; those with Prader-Willi typically have an average lifespan.
Kimber has taught her parents, and those around her to love deeply and unconditionally.