Non-Verbal

We are actively collecting and updating new stories. We welcome you to check back often, and to share your story. If you or someone you know has a story to share, please contact us to add your story.

Share Your Story

Select a Category to View Stories

Most Recent Stories

Connie: Cerebral Palsy, Cognitive Impairment and Seizure Disorder

" target="_blank">Listen to Story

Connie tell us what is was like raising her daughter, Farah, who has Cerebral Palsy, a cognitive impairment, and a seizure disorder. who is total care- meaning someone needs to feed, bathe, and clothe her. She open up about the joys and challenges she faced raising a special needs daughter. Connie was told for the first 5 years of Farah’s life to place her in an institution, but Connie refused. Farah is now 41 years old, and has remained at home with her family all of her life.

[...]
Read More

Maria and Brandon: Chromosomal Deletion 9Q

" target="_blank">Listen to Story Read Story

While Maria was pregnant with her son Chase, a prenatal ultrasound revealed a cleft lip and some umbilical cord abnormalities.

After Chase was born, testing revealed he was missing part of a 9th chromosome on the Q branch, known as Chromosomal Deletion 9Q. Chase is the only known person with this condition, in it’s severity, in the whole world.

[...]
Read More

Phyllis and Keven: Polymicrogyria

" target="_blank">Listen to Story Read Story

Phyllis and Keven’s youngest daughter, Laura, was not progressing as a typical  three or four month old, so they took her to a specialist and found out Laura  had Polymicrogyria. Phyllis and Kevin were crushed to learn the news. Laura could not walk, talk, or feed herself, but she could light the room with her infectious smile.

[...]
Read More