When Megan and Josh’s son Edison was born, they both noticed some abnormalities, including syndactyly, immediately. Megan and Josh met with a pediatrician, who then sent Edison to a children’s hospital, where Apert syndrome was confirmed. Edison was later diagnosed with hydrocephalus.
She and her husband Jeff were told to either terminate the pregnancy, or plan a funeral. They chose to continue the pregnancy. Arabella is now a beautiful 2 year old. She was officially diagnosed with Ellis-van Creveld syndrome, a sub-type of Short Rib Polydactyly syndrome. This syndrome has a 30-50 percent survival rate.
Katherine is now expecting her third child, Shiloh. Shiloh has also been diagnosed EVC, as well as a major heart defect. They do not know if Shiloh will live, but are grateful for everyday they have with her.
During a prenatal ultrasound, Miggy was told all of her baby’s limbs were either misshapen, deformed, or missing bones all together. Doctor’s diagnosed her daughter with Microgastria and Limb Reduction Complex.
Her daughter is now 7, and is beautiful, bright and has a great sense of humor. She has learned to adapt to the world around her; using her feet as if they were hands.
Miggy has been an amazing advocate for her daughter, and for other special need families and children. She has as fantastic blog, This Little Miggy, where she does a “special needs spotlight” and has shared over 150 stories.
Adrianne and Jason had two biological daughters when they adopted their son and then their third daughter Maria from the Philippines. Maria has Tetra Amelia syndrome, a meaning she was born with the absence of all four limbs. Adrianne and Jason had no experience with special needs children, so they had to search and find resources, ask questions, and prepare to adopt Maria. Maria has been home with her new family for almost a year and a half. She has overcome many limitations and shown her family that, despite her disability, she can be happy and enjoy life like anyone else.