Encephalocele

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Brittany and Tyler: Hydrocephalus, Encephalocele, and other complications.

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Brittany and her husband Tyler struggled for years to get pregnant. When she got pregnant with their son Max, they were ecstatic. During a prenatal ultrasound, doctors found a multitude of abnormalities, including a club foot, heart abnormalities, missing brain matter, and Hydrocephalus. Doctors also found that Brittany had Amniotic Band syndrome.

Max lived an amazing 5 weeks before he passed away. He constantly amazed medical professionals and his family with his abilities despite having almost no brain. He has forever changed his parents live’s, and has made a big impact on people all over the world.

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Jen and John: Encephalocele

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Jen was pregnant when she and her husband, John, found out that their baby, named Jackson was diagnosed with Encephalocele. Their doctor, as well as a with a Genetic Counselor, explained that the baby would either terminate itself, or not go full term, or if he lived he would have no quality of life if they continued the pregnancy. Jen and John chose to continue the pregnancy despite the challenges, and are both so glad they followed their hearts. He brings joy to their lives, and even though he has multiple physical differences, he is a happy and delightful child. 

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