Down syndrome- Trisomy 21

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Gina- Down syndrome and Spinal Muscular Atrophy

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Immediately after Gina’s daughter Larkin was born, Gina could tell she had Down syndrome. When Larkin was 10 weeks old, she was diagnosed with Spinal Muscular Atrophy Type 1, which is the most severe type. Gina says one of the hardest things is not being able to give her other children as much attention. Larkin is now 12 years old, and is the only known person to have lived with both Down syndrome and SMA.

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Nikki and Alan: Down syndrome

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Nikki and Alan were shocked when their newborn son Wil received a Down syndrome diagnosis. While Nikki immediately felt peace, Alan felt his entire world was crumbling. It took Alan over a month of grieving before he was able to move forward.

They now raise money for worldwide special needs adoption, and continued education for people with disabilities by selling “Wil can fly” calendars. You can find out more by visiting wilcanfly.com

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Mercedes and Andy: Down syndrome Adoption

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After a heart breaking year, Mercedes and Andy went on a mission trip to Haiti and served at an orphanage with special needs children. Shortly after, they decided to adopt a child with Down syndrome. 6 months later their beautiful daughter Sunflower was places in their arms.

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Jennifer- Sibling: Down syndrome

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Jennifer has a little sister that has Down syndrome. She also got a darling son with Down syndrome, when she married her husband. Jennifer talks about how her sister shaped her life, influencing what Jennifer studied in school and who she eventually married.

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Down syndrome. She also got a darling son with Down syndrome, when she married her husband. Jennifer talks about how her sister shaped her life, influencing what Jennifer studied in school and who she eventually married.">

Posted October 2017 under Down syndrome- Trisomy 21, Sibling Stories.

Will-Sibling: 3 Siblings with Disabilities

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Will has 3 siblings, all of whom have a disability. His sister, Heidi, has Down syndrome; and is brothers Barrett and Fritz have Autism.

Will opens up about how it’s been being their sibling.

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Karen: Down syndrome

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During her pregnancy Karen saw a high risk obstetrician- because of her age. She had routine prenatal ultrasounds and screenings and all results came back normal. Shortly after her son Caleb was born, Karen was shocked to learn he had Down syndrome.

Karen is a fantastic support and advocate for her son, and all individuals with disabilities.

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A Snapshot Story- Jessica: Down syndrome

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When the  doctor called Jessica  with test results that showed her unborn son would have Down syndrome, she immediately felt a sense of fear and anger she had never experienced before. Negative thoughts flooded her brain for days and weeks. She felt resentment and anger towards her pregnancy.

When she told her closest friends and family the news; their reactions were overwhelmingly positive and supportive. They showered her with love and told her how amazing he was going to be. And they were so right.

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Down syndrome, she immediately felt a sense of fear and anger she had never experienced before. Negative thoughts flooded her brain for days and weeks. She felt resentment and anger towards her pregnancy. When she told her closest friends and family the news; their reactions were overwhelmingly positive and supportive. They showered her with love and told her how amazing he was going to be. And they were so right.">

Posted June 2017 under Chromosome Abnormality, Congenital Heart Defect, Down syndrome- Trisomy 21, Prenatal diagnosis, Snapshot story.

Sasha and Gary: Down syndrome

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Sasha and Gary went to a prenatal doctors appointment where an ultrasound showed enlarged ventricles in their baby’s brain, as well as holes in her heart. An amniocentesis revealed their daughter, Zoey, would be born with Trisomy 21- also known a Down syndrome. Zoey is now 7 years old, and her life has inspired Sasha and Gary to adopt a little girl from China with Down syndrome.

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Tamara and Matthew: Currently pregnant with a fetal diagnosis of Down syndrome

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Tamara is 7 months pregnant with her first child. Early in her pregnancy, a blood test revealed their son had a 93% chance of having Down syndrome. Tamara and Matthew open up about the grieving process they have been through, and share the emotional journey they have been on since.

 

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