Down syndrome- Trisomy 21

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Karen: Down syndrome

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During her pregnancy Karen saw a high risk obstetrician- because of her age. She had routine prenatal ultrasounds and screenings and all results came back normal. Shortly after her son Caleb was born, Karen was shocked to learn he had Down syndrome.

Karen is a fantastic support and advocate for her son, and all individuals with disabilities.

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A Snapshot Story- Jessica: Down syndrome

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When the  doctor called Jessica  with test results that showed her unborn son would have Down syndrome, she immediately felt a sense of fear and anger she had never experienced before. Negative thoughts flooded her brain for days and weeks. She felt resentment and anger towards her pregnancy.

When she told her closest friends and family the news; their reactions were overwhelmingly positive and supportive. They showered her with love and told her how amazing he was going to be. And they were so right.

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Sasha and Gary: Down syndrome

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Sasha and Gary went to a prenatal doctors appointment where an ultrasound showed enlarged ventricles in their baby’s brain, as well as holes in her heart. An amniocentesis revealed their daughter, Zoey, would be born with Trisomy 21- also known a Down syndrome. Zoey is now 7 years old, and her life has inspired Sasha and Gary to adopt a little girl from China with Down syndrome.

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Tamara and Matthew: Currently pregnant with a fetal diagnosis of Down syndrome

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Tamara is 7 months pregnant with her first child. Early in her pregnancy, a blood test revealed their son had a 93% chance of having Down syndrome. Tamara and Matthew open up about the grieving process they have been through, and share the emotional journey they have been on since.

 

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Terah and Brian: Down syndrome

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Terah and Brian tried for five years to have a child until Terah got pregnant with their daughter Indy. They did not have any genetic testing done while Terah was pregnant, so they were surprised to find out just an hour after her birth, that Indy had Down syndrome. They were both devastated and scared, not knowing what the future held or how to accept the diagnosis. They decided to conquer their fears and do the best they could.

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Jennifer and James: Adoption of Four Special Needs Children.

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Jennifer and James have 10 children, four are biological and six were internationally adopted. Four of their children have special needs including Down syndrome, Autism, Reye’s syndrome, and Moyamoya disease.  Jennifer and James have a truly inspiring story and so much love in their family.

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Shirlene and Jim: 51 year-old with Down syndrome

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Jim is 51 years old and has Down syndrome and his mother, Shirlene, is in her mid-80’s. Shirlene never placed Jim in an institution, like many parents of her generation did, but instead brought him home and treated him like her other children. Shirlene and her husband had never heard of Down syndrome before, they did not know what it was and it devastated them both.

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Kecia and Kris: 3 children with Down syndrome

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Kecia and Kris have five biological children, one of which has Down syndrome. They also have two adopted children with Down syndrome.

When their third daughter was born, a few minutes after her arrival they were told she had Down syndrome. Kecia and Kris quickly learned to focus on the things she could and would do, and not the things she couldn’t. Since then, they have opened their hearts and home to two more children with Down syndrome who they have adopted from Ukraine 

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Mckenzie: Diaphragmatic Hernia, Cystic Hygroma, and Renal Agenisis

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Mckenzie had her first child, whom she named Trevor, and he has Down syndrome.  When Mckenzie found out she was pregnant with her second child, Maely Grace, ultrasounds and testing revealed Maely had a Diaphragmatic Hernia, Cystic Hygroma, Renal Agenisis and other issues. Mckenzie was told that with all of Maely’s defects, she would either be stillborn or die shortly after her birth; it was recommended that she terminate the pregnancy.

 

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