Cleft Lip

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Maria and Brandon: Chromosomal Deletion 9Q

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While Maria was pregnant with her son Chase, a prenatal ultrasound revealed a cleft lip and some umbilical cord abnormalities.

After Chase was born, testing revealed he was missing part of a 9th chromosome on the Q branch, known as Chromosomal Deletion 9Q.┬áChase is the only known person with this condition, in it’s severity, in the whole world.

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Lacey: Tessier Cleft lip and palate and Micropthalmia

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Doctors told Lacey throughout her pregnancy, that her unborn son Christian had many complications. Once Christian was born, doctors diagnosed him with Tessier Cleft lip and palate with Micropthalmia.

Lacey says although it can be difficult when people stare, or give them looks filled with pity, Christian has has brought them an incredible amount of love and joy.

Lacey has written a book about her experience as a parent of a child with special needs, you can find it here.

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Kim: CHARGE syndrome

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When Kim went in for a prenatal ultrasound, doctors found her baby had a cleft lip and a heart defect. After her daughter Jackie was born, it was discovered that Jackie had CHARGE syndrome. In the begining Kim struggled with how to cope with Jackie’s diagnosis. Jackie has changed Kim and her family’s world for the better. She has shown them what really matters in life, and that it is precious.

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Traci and Mike: Semi-Lobar Holoprosencephaly

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At 4 months pregnant, Traci and Mike went to the Dr.’s office for a routine check-up, and found out that one of their twin boys, Liam, had a Cleft Lip, and some abnormalities with the development of his brain. Traci and Mike were sent to see a specialist that who confirmed Liam had Semi-Lobar Holoprosencephaly, and suggested they terminate the pregnancy, which would have terminated ┬áboth of their babies.

 

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