Child Loss

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Most Recent Stories

Caitlin and Dallin: Spinal Muscular Atrophy, or SMA, Type 1

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Caitlin and Dallin’s daughter, Auni, was 4 months old when they realized she wasn’t developing typically. When Auni was 7 months old, she was diagnosed with Type 1 Spinal Muscular Atrophy, or SMA, which is a terminal diagnosis. Auni lived 22 months before she passed away. Caitlin and Dallin open up about the emotional journey they have been on, and the gift Auni was to them, and the joy she brought to their lives.

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Jennifer and James: Adoption of Four Special Needs Children.

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Jennifer and James have 10 children, four are biological and six were internationally adopted. Four of their children have special needs including Down syndrome, Autism, Reye’s syndrome, and Moyamoya disease.  Jennifer and James have a truly inspiring story and so much love in their family.

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Phyllis and Keven: Polymicrogyria

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Phyllis and Keven’s youngest daughter, Laura, was not progressing as a typical  three or four month old, so they took her to a specialist and found out Laura  had Polymicrogyria. Phyllis and Kevin were crushed to learn the news. Laura could not walk, talk, or feed herself, but she could light the room with her infectious smile.

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