Summer found out that Ares had Anencephaly during an early ultrasound and learned that if he made it to term and was born would only live a few hours at best. Rather than aborting Ares, Summer wanted to meet and hold him and if possible have Ares be an organ donor so other babies could benefit from his life. Ares lived a handful of hours and passed away. Summer she sees the positive outcome on herself and her family.
Courtney had a typical, uneventful pregnancy. But, immediately after she gave birth to her daughter, Brenna, there was a shocked silence in the hospital room. Shortly after, Brenna was diagnosed with Harlequin Ichthyosis, which is the rarest most severe form of Ichthyosis. In the beginning, Courtney and her husband were fearful for Brenna’s future; but Brenna’s determination and confidence has shown her parents that nothing will hold her back. Brenna is now 5 years old, and her parents feel privileged and honored to be her parents.
Brittany and her husband Tyler struggled for years to get pregnant. When she got pregnant with their son Max, they were ecstatic. During a prenatal ultrasound, doctors found a multitude of abnormalities, including a club foot, heart abnormalities, missing brain matter, and Hydrocephalus. Doctors also found that Brittany had Amniotic Band syndrome.
Max lived an amazing 5 weeks before he passed away. He constantly amazed medical professionals and his family with his abilities despite having almost no brain. He has forever changed his parents live’s, and has made a big impact on people all over the world.
Caitlin and Dallin’s daughter, Auni, was 4 months old when they realized she wasn’t developing typically. When Auni was 7 months old, she was diagnosed with Type 1 Spinal Muscular Atrophy, or SMA, which is a terminal diagnosis. Auni lived 22 months before she passed away. Caitlin and Dallin open up about the emotional journey they have been on, and the gift Auni was to them, and the joy she brought to their lives.
While Maria was pregnant with her son Chase, a prenatal ultrasound revealed a cleft lip and some umbilical cord abnormalities.
After Chase was born, testing revealed he was missing part of a 9th chromosome on the Q branch, known as Chromosomal Deletion 9Q. Chase is the only known person with this condition, in it’s severity, in the whole world.
Kelly and Zac were blindsided when tests showed that their newborn son, Everett, had Achondroplasia– a form of Dwarfism. They grieved for the life they thought they were going to have; and were fearful for a life they knew nothing about. They found peace and hope through God, and learned not to be fearful for the future. They intensely love their son, and have built a community of support for their family. They consider themselves blessed to be Everett’s parents.
When Kim went in for a prenatal ultrasound, doctors found her baby had a cleft lip and a heart defect. After her daughter Jackie was born, it was discovered that Jackie had CHARGE syndrome. In the begining Kim struggled with how to cope with Jackie’s diagnosis. Jackie has changed Kim and her family’s world for the better. She has shown them what really matters in life, and that it is precious.
When Megan and Josh’s son Edison was born, they both noticed some abnormalities, including syndactyly, immediately. Megan and Josh met with a pediatrician, who then sent Edison to a children’s hospital, where Apert syndrome was confirmed. Edison was later diagnosed with hydrocephalus.