Infant Loss

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Summer: Anencephaly

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Summer found out that Ares had Anencephaly during an early ultrasound and learned that if he made it to term and was born would only live a few hours at best. Rather than aborting Ares, Summer wanted to meet and hold him and if possible have Ares be an organ donor so other babies could benefit from his life. Ares lived a handful of hours and passed away. Summer she sees the positive outcome on herself and her family.

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Brittany and Tyler: Hydrocephalus, Encephalocele, and other complications.

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Brittany and her husband Tyler struggled for years to get pregnant. When she got pregnant with their son Max, they were ecstatic. During a prenatal ultrasound, doctors found a multitude of abnormalities, including a club foot, heart abnormalities, missing brain matter, and Hydrocephalus. Doctors also found that Brittany had Amniotic Band syndrome.

Max lived an amazing 5 weeks before he passed away. He constantly amazed medical professionals and his family with his abilities despite having almost no brain. He has forever changed his parents live’s, and has made a big impact on people all over the world.

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Mandy and Steven: Hyrops Fetalis, and Bilateral Renal Agenesis

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Mandy and Steven had four girls and were excited at the possibility of their fifth child being a boy. At 20 weeks, Mandy and her oldest daughter went to her doctor’s appointment and were told that something was seriously wrong with her baby.  Mandy and Steven were told that the baby had a condition called Hydrops Fetalis. The doctors also had trouble finding some vital organs and noticed his heart was enlarged; they offered the option to terminate the baby. After many tests were done, they found out that the baby had Bilateral Renal Agenesis

 

 

 

 

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Kristin and Chris: Full Trisomy 9

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At Kristin’s 20 week prenatal ultrasound doctors found multiple abnormalities. Although Kristin and Chris were offered to terminate their son, Ethan, multiple times, they chose to continue the pregnancy. Ethan lived 93 minutes. The geneticists found he had full Trisomy 9, which is very rare. None of their doctors had ever heard of a baby with Trisomy 9 being born alive.

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Mckenzie: Diaphragmatic Hernia, Cystic Hygroma, and Renal Agenisis

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Mckenzie had her first child, whom she named Trevor, and he has Down syndrome.  When Mckenzie found out she was pregnant with her second child, Maely Grace, ultrasounds and testing revealed Maely had a Diaphragmatic Hernia, Cystic Hygroma, Renal Agenisis and other issues. Mckenzie was told that with all of Maely’s defects, she would either be stillborn or die shortly after her birth; it was recommended that she terminate the pregnancy.

 

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Sydney and Darren: Alobar Holoprosencephaly

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Sydney and Darren’s baby was diagnosed with Alobar Holoprosencephaly, a condition that is incompatible with life. They were told the baby may not survive the pregnancy, and if she was delivered, wouldn’t live very long. They chose to continue the pregnancy in hopes they would get a few minutes with her alive before she passed away. The decision to press forward with the pregancy has impacted all who know them.

 

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