Epilepsy

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Most Recent Stories

Gwen: Asparagine Synthetase Deficiency

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Through Gwen’s second pregnancy, all tests came back normal and she went full term with her baby. After she was born,  her daughter was diagnosed with Asparagine synthetase deficiency– which includes Microcephaly and Epilepsy– as well as DwarfismCortical Visual Impairment, and Cerebral Palsy.

When she was pregnant with her third child, doctors discovered her unborn baby would be born with the same diagnoses.

Gwen opens up about what it has been like raising two profoundly affected children.

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Kaitlin: Chromosome Deletion, CHD, Neurological Differences

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Kaitlin had an average pregnancy, and delivery. Shorty after Mason was born, Kaitlin was told by doctors that he had “dysmorphic features.” He has a deletion of two separate chromosomes, a congenital heart defect, congestive heart failure, microcephaly, auditory neuropathy and many others. Despite the challenges, he is the light of his family’s life.

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Camille and Martin: Epilepsy

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Camille and Martin have four children, and three of them have a medically induce developmental delay. Each of their children were born without complications and had no problems during pregnancy or birth. Their children were typical until they were each 5 to 7 months old, when they started having seizures and were diagnosed with Epilepsy.  A medication used to treat their seizures caused developmental delay, and learning disabilities.

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Epilepsy.  A medication used to treat their seizures caused developmental delay, and learning disabilities.">

Posted February 2017 under Epilepsy.

Lisa and Steven: Epilepsy and Developmental Delay

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Lisa and Steven have a son named Matt who has Epilepsy and and a developmental delay. When Matt was six, he had his first Grand Mal seizure; his parents took him to the doctor where he was then diagnosed with Epilepsy.  Lisa and Steven describe Matt as a loving and gifted child; he is affectionate and has a desire to please others.

 

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Epilepsy and and a developmental delay. When Matt was six, he had his first Grand Mal seizure; his parents took him to the doctor where he was then diagnosed with Epilepsy.  Lisa and Steven describe Matt as a loving and gifted child; he is affectionate and has a desire to please others.  ">

Posted February 2017 under Epilepsy.

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