Down syndrome- Trisomy 21

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Sasha and Gary: Down syndrome

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Sasha and Gary went to a prenatal doctors appointment where an ultrasound showed enlarged ventricles in their baby’s brain, as well as holes in her heart. An amniocentesis revealed their daughter, Zoey, would be born with Trisomy 21- also known a Down syndrome. Zoey is now 7 years old, and her life has inspired Sasha and Gary to adopt a little girl from China with Down syndrome.

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Tamara and Matthew: Currently pregnant with a fetal diagnosis of Down syndrome

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Tamara is 7 months pregnant with her first child. Early in her pregnancy, a blood test revealed their son had a 93% chance of having Down syndrome. Tamara and Matthew open up about the grieving process they have been through, and share the emotional journey they have been on since.

 

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Down syndrome. Tamara and Matthew open up about the grieving process they have been through, and share the emotional journey they have been on since.  ">

Posted April 2017 under Down syndrome- Trisomy 21, Prenatal diagnosis.

Terah and Brian: Down syndrome

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Terah and Brian tried for five years to have a child until Terah got pregnant with their daughter Indy. They did not have any genetic testing done while Terah was pregnant, so they were surprised to find out just an hour after her birth, that Indy had Down syndrome. They were both devastated and scared, not knowing what the future held or how to accept the diagnosis. They decided to conquer their fears and do the best they could.

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Down syndrome. They were both devastated and scared, not knowing what the future held or how to accept the diagnosis. They decided to conquer their fears and do the best they could.">

Posted April 2017 under Down syndrome- Trisomy 21.

Jennifer and James: Adoption of Four Special Needs Children.

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Jennifer and James have 10 children, four are biological and six were internationally adopted. Four of their children have special needs including Down syndrome, Autism, Reye’s syndrome, and Moyamoya disease.  Jennifer and James have a truly inspiring story and so much love in their family.

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Shirlene and Jim: 51 year-old with Down syndrome

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Jim is 51 years old and has Down syndrome and his mother, Shirlene, is in her mid-80’s. Shirlene never placed Jim in an institution, like many parents of her generation did, but instead brought him home and treated him like her other children. Shirlene and her husband had never heard of Down syndrome before, they did not know what it was and it devastated them both.

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Jim is 51 years old and has Down syndrome and his mother, Shirlene, is in her mid-80’s. Shirlene never placed Jim in an institution, like many parents of her generation did, but instead brought him home and treated him like her other children. Shirlene and her husband had never heard of Down syndrome before, they did not know what it was and it devastated them both.

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Posted March 2017 under Down syndrome- Trisomy 21.

Kecia and Kris: 3 children with Down syndrome

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Kecia and Kris have five biological children, one of which has Down syndrome. They also have two adopted children with Down syndrome.

When their third daughter was born, a few minutes after her arrival they were told she had Down syndrome. Kecia and Kris quickly learned to focus on the things she could and would do, and not the things she couldn’t. Since then, they have opened their hearts and home to two more children with Down syndrome who they have adopted from Ukraine 

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Down syndrome. They also have two adopted children with Down syndrome. When their third daughter was born, a few minutes after her arrival they were told she had Down syndrome. Kecia and Kris quickly learned to focus on the things she could and would do, and not the things she couldn’t. Since then, they have opened their hearts and home to two more children with Down syndrome who they have adopted from Ukraine ">

Posted February 2017 under Adoption, Down syndrome- Trisomy 21, International Adoption.

Mckenzie: Diaphragmatic Hernia, Cystic Hygroma, and Renal Agenisis

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Mckenzie had her first child, whom she named Trevor, and he has Down syndrome.  When Mckenzie found out she was pregnant with her second child, Maely Grace, ultrasounds and testing revealed Maely had a Diaphragmatic Hernia, Cystic Hygroma, Renal Agenisis and other issues. Mckenzie was told that with all of Maely’s defects, she would either be stillborn or die shortly after her birth; it was recommended that she terminate the pregnancy.

 

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Amber and Justin: Down syndrome

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Amber and Justin found out their baby had issues at a 14-week pre-natal checkup. They were strongly encouraged to abort the baby because the doctors thought the baby had either Trisomy 13- Patau syndrome, 18- Edwards syndrome, or Trisomy 21-Down syndrome. Their decision was more complicated because Amber has multiple sclerosis. They opted to keep the baby, and little Finneas was born with Down syndrome.

 

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