Tetralogy of Fallot

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Most Recent Stories

Jessica and Johnny: Goldenhar syndrome

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While Jessica was pregnant with her son Griffin, she and her husband Johnny were informed he had a heart complication- Tetralogy of Fallot. It wasn’t until Griffin was born that they realized there were further complications. Griffin has been diagnosed with Goldenhar syndrome. He has scoliosis, facial differences, heart complications, and a limb difference. Griffin is very proud of who he is, he is extremely positive, and advocates for himself.

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Jessie and Nathan: DiGeorge syndrome and other abnormalities

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During a 24 week ultrasound Jessie and Nathan were told that their unborn son, Ammon, had a heart condition as well as clubfoot in both feet. After they met with a specialist, and were encouraged to abort their son. They choose to continue with the pregnancy and Ammon was unexpectedly born with several other conditions. Despite all of this, he has enriched their lives with his happy personality.

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