Kellie was 3 1/2 years old when her twin sisters were born. Both twins were born with Spastic Quadriplegic Cerebral Palsy, and required total care. Kellie opens up about her life as a sibling to sisters that require so much care.
About 8 hours after her twin daughters, Kay and Karen and were born, they were moved to the NICU because a nurse noticed some seizure activity. Shortly after, both girls were diagnosed with Spastic Quadriplegic Cerebral Palsy. After caring for her daughters for 41 years, Ann opens up about the joys and challenges she has experienced raising her daughters.
Connie tell us what is was like raising her daughter, Farah, who has Cerebral Palsy, a cognitive impairment, and a seizure disorder. who is total care- meaning someone needs to feed, bathe, and clothe her. She open up about the joys and challenges she faced raising a special needs daughter. Connie was told for the first 5 years of Farah’s life to place her in an institution, but Connie refused. Farah is now 41 years old, and has remained at home with her family all of her life.
When Tori and Matt’s daughter failed to sit up or roll over by the time she was 9 months, they started to worry. Their Pediatrician referred them to a Pediatric Developmental Specialist. Through MRI testing, they found that Tori got Cytomegolavirus (CMV) while pregnant, which resulted in their daughter having Cerebral Palsy.
Chrissy was born in the 1970’s when there were few resources. There was little area support for for Ann or Chrissy, so Ann created her own program, and parent network. She lobbied and joined the legislative coalition. She was laughed at, people told her she would never succeed or get funding for her program. Ann proved them wrong.
During Ileana’s 20 week ultrasound, doctors discovered her baby girl, Giselle had ventriculomegaly. Ileana and her husband Lorenzo were offered termination as an option, but they decided to continue with the pregnancy.