Cerebral Palsy

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Most Recent Stories

Connie: Cerebral Palsy, Cognitive Impairment and Seizure Disorder

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Connie tell us what is was like raising her daughter, Farah, who has Cerebral Palsy, a cognitive impairment, and a seizure disorder. who is total care- meaning someone needs to feed, bathe, and clothe her. She open up about the joys and challenges she faced raising a special needs daughter. Connie was told for the first 5 years of Farah’s life to place her in an institution, but Connie refused. Farah is now 41 years old, and has remained at home with her family all of her life.

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Tori and Matt: Cerebral Palsy due to Cytomegalovirus or CMV

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When Tori and Matt’s daughter failed to sit up or roll over by the time she was 9 months,  they started to worry. Their Pediatrician referred them to a Pediatric Developmental Specialist. Through MRI testing, they found that Tori got Cytomegolavirus (CMV) while pregnant, which resulted in their daughter having Cerebral Palsy.

 

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Ann: Ataxic Cerebral Palsy and seizure disorder

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Ann has been a tireless advocate for her daughter Chrissy, who was diagnosed with Ataxic Cerebral Palsy and a seizure disorder when she was almost a year old.

Chrissy was born in the 1970’s when there were few resources. There was little area support for for Ann or Chrissy, so Ann created her own program, and parent network. She lobbied and joined the legislative coalition. She was laughed at, people told her she would never succeed or get funding for her program. Ann proved them wrong.

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Ileana and Lorenzo: Microcephaly and Cerebral Palsy

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During Ileana’s 20 week ultrasound, doctors discovered her baby girl, Giselle had ventriculomegaly. Ileana and her husband Lorenzo were offered termination as an option, but they decided to continue with the pregnancy.

Giselle, was diagnosed with Microcephaly as a young baby. She is now 3 years old and was recently diagnosed with Cerebral Palsy.

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Gwen: Microcephaly, Asparagine synthetase deficiency or ASNS, Dwarfism, Cerebral Palsy, Epilepsy

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Through Gwen’s second pregnancy, all tests came back normal and she went full term with her baby. After she was born,  her daughter was diagnosed with Asparagine synthetase deficiency– which includes Microcephaly and Epilepsy– as well as DwarfismCortical Visual Impairment, and Cerebral Palsy.

When she was pregnant with her third child, doctors discovered her unborn baby would be born with the same diagnoses.

Gwen opens up about what it has been like raising two profoundly affected children.

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