Achondroplasia

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Most Recent Stories

Kelly and Zac: Dwarfism- Achondroplasia

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Kelly and Zac were blindsided when tests showed that their newborn son, Everett, had Achondroplasia– a form of Dwarfism. They grieved for the life they thought they were going to have; and were fearful for a life they knew nothing about. They found peace and hope through God, and learned not to be fearful for the future. They intensely love their son, and have built a community of support for their family. They consider themselves blessed to be Everett’s parents.

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Achondroplasia- a form of Dwarfism. They grieved for the life they thought they were going to have; and were fearful for a life they knew nothing about. They found peace and hope through God, and learned not to be fearful for the future. They intensely love their son, and have built a community of support for their family. They consider themselves blessed to be Everett's parents.">

Posted July 2017 under Achondroplasia, Dwarfism, Infant Diagnosis.

Rebekah and Chris: Dwarfism-Achondroplasia

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Rebekah and Chris have Achondroplasia, a form of Dwarfism.

They have 2 children, one that has Dwarfism, and one that does not.

Rebekah and Chris open up about what it’s like living as a little person, and how they feel now that they have a daughter with the same condition.

Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child. You can read a letter she has written to these parents here.

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Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah and Chris open up about what it's like living as a little person, and how they feel now that they have a daughter with the same condition. Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child. You can read a letter she has written to these parents here.">

Posted June 2017 under Achondroplasia, Dwarfism, Prenatal diagnosis.

Leslie: Achondroplasia

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During a prenatal ultrasound, Leslie’s doctor  told her that her daughter Lilah would be born with Achondroplasia, a form of Dwarfism. Leslie opens up about the emotional journey from denial to acceptance, and how blessed they feel that she and her husband were chosen to be Lilah’s parents.

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Achondroplasia, a form of Dwarfism. Leslie opens up about the emotional journey from denial to acceptance, and how blessed they feel that she and her husband were chosen to be Lilah's parents.">

Posted May 2017 under Achondroplasia, Dwarfism, Prenatal diagnosis.