Alyssa: Prader-Willi syndrome

Immediately after Kimber was born, doctors knew there was something wrong. She slept constantly, and she was very limp. Doctors didn’t expect her to live past 6 months. After a few weeks a genetic test revealed she had Prader-Willi syndrome.

Alyssa was relieved to get this diagnosis , because this meant Kimber would live longer than the 6 months doctors predicted; those with Prader-Willi typically have an average lifespan.

Kimber has taught her parents, and those around her to love deeply and unconditionally.


Prader-Willi syndrome. Alyssa was relieved to get this diagnosis , because this meant Kimber would live longer than the 6 months doctors predicted; those with Prader-Willi typically have an average lifespan. Kimber has taught her parents, and those around her to love deeply and unconditionally.">

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