Janeen- A Grandma’s perspective: Lissencephaly

Janeen is the grandmother of Hunter, who was diagnosed with Lissencephaly at four months old. The day Hunter was diagnosed, he had a seizure and was taken to the hospital where he spent several hours having tests done before a diagnosis was confirmed. Janeen describes the most difficult aspect of Hunter’s journey as having to watch the seizures, knowing she cannot do anything to help him. Hunter was only given an estimated five years to live, but is now 10 years old and has changed his family’s lives in ways they did not expect.

 

 


Lissencephaly at four months old. The day Hunter was diagnosed, he had a seizure and was taken to the hospital where he spent several hours having tests done before a diagnosis was confirmed. Janeen describes the most difficult aspect of Hunter’s journey as having to watch the seizures, knowing she cannot do anything to help him. Hunter was only given an estimated five years to live, but is now 10 years old and has changed his family’s lives in ways they did not expect.    ">

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